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Realization of Limitations

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I met up with friends for the fourth which turned out to be a very nice evening. We ate, laughed and viewed the fireworks. A special friend I've known for years, which generally we get to see each other 3-4 times a year, invited me to another outing next week at her house. As we sat watching the fireworks, she gently mentioned that she had a bedpan for me as I can't take stairs very well. I don't know why it hit me so, but I never thought on those terms. I guess I didn't think that far ahead. The fact she did, is gracious, but it threw me that it may be a necessity. Now I don't think I want to go, in that I feel disabled more that I thought I did. A neighbor who is 20 years older then me, took my arm and offered to walk me home. I didn't need the help, but she was so pleasant and nice, I let her. I know I'm being foolish, but again, I thought I hid my disability well. Guess I have to start learning to stop hiding and just start living.



It is what it is...........

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Hey Tru


I can understand how that would hit a small nerve in it's own way, in that it made you think about how things might possibly be in later years, which would of course make you sad to think about should it happen, it would anybody....all you can do is try not to over think about what someday might or might not hold for you if you can (I know well, easier said that done!).


Just my opinion, but I think you should not let that stop you from going...sounds to me like in her own best girlfriend way, she is trying to tell you not to worry about all her stairs because she wants to ensure you are just as comfortable in her home as you are in yours ...they are just full of love for you! That alone will make everything worthwhile, so yes, I think you should take your own advice, go, have loads of fun, seize the day, and just live it up with your true friends!!

Sending good wishes your way!

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I'm glad you had a great 4th of July! I sometimes forget my limitations until I'm reminded I can't do something. People offer to help me with things I can do and I let them because it makes both of us feel good. Yesterday, at my sister's I finished a hotdog and mentioned I wanted to try the hamburgers. My sister-in-law offered to get my hamburger and my niece refilled my water. It's not all the time I get the queen treatment, so I enjoyed every minute of it!


It sounds like you have great neighbors and people who truly care for you! I feel great knowing there are angels in disguises in this world!





Live well, Laugh often, Love much

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I know that realization. This spring I couldn't get my rose bushes trimmed. I have about ohhhhh 30 or so I guess. This year my 83 year old neighbor asked if it didn't hurt my feelings too much she would love to help me out and trim my roses. She said she's been wanting to do something for me for a long time...... That night I had a few tears, and said "You know it's bad when your 83 year old neighbor has to come do your yard work!"




I have to say however, that she has a green thumb, my roses have never looked better!

Warm and gentle hugs,



ISN Support Specialist

International Scleroderma Network (ISN)

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