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luvbnmom3

Here's a crazy one for ya!

11 posts in this topic

So... I was at a graduation open house the other day where it happened to be cold & rainey. I'm walking around talking to people & whenever I moved my right hand, it felt like my finger pad (in my thumb where I have the most tissue loss) was jiggling!!! It was weird, I could shake my hand & feel it, like there was water in there or something... maybe the underside of the skin loose or something & being that cold, there wasn't any swelling in my hands so I felt it move?

 

Anyway, I know that probably sounds crazy but I thought I throw it out there in case anyone else has been there done that. I'm sure it just had to be loose skin...when I get cold enough, my thumb pads get so flat, they're also the least tight compared to my other fingers.

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Hey luvb~

 

Jiggly finger pads, that is the first time I've heard that one but not the weirdest one yet so you are not alone there. I have pudding skin :lol:

 

Perhaps we need to make our own list of sclero symptoms - "The Weird and Weirder."


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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It is so easy to start finding new things. I had a strange purple spot that worried me until it washed away. It turned out to be a stain from some fresh blackberries I was preparing. Duh.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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<<It turned out to be a stain from some fresh blackberries I was preparing>>

 

Hi Jefa ,

 

Wild black raspberries are ripening here and my fingers have been purple from cleaning, baking cobblers, and freezing them!!! love them!!!

 

Take care, Everyone.

Margaret

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I haven't experienced the jiggly finger pads. I agree that we're more aware of strange sensations or skin changes. I began to notice a small reddish spot on the side of my nose, where my sunglasses rest. It lingered for months and I started worrying. I researched the internet and worried myself sick with all the possible conditions. It turned out to be nothing serious and the mark eventually disappeared. I was so grateful it wasn't another development.

 

Jefa's comment brought a smile to my face and reminded me to loosen up.

 

 

 

Razz


Live well, Laugh often, Love much

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ROFL...no doubt. Is it especially so when your doctor doesn't know for sure what is going on....I always wonder if once they just figure it out & start helping me if I won't notice stuff as much...you know... once you have your answer you can move on idea... but then I know some symptoms you can't ignore...lol.

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I'm still laughing!

 

I picture any one of us looking at our purple stained hands and saying out loud, "Oh....My! What Now?!"

 

And then......"Uh.....oh."

 

I'm glad it washed away before you went to the doctor Jefa :lol:


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Hello All! I'm waiting for a doctor to have enough courage to give me a definitive diagnosis but being an ICU nurse myself I am not inclined to wait on them for much. ;) My symptoms of the last few years and positive Scl70 have me convinced and I am so thankful to have such a wonderful community of support online. Anyway--I have noticed during a flare when my fingers are swollen like sausage in the morning, they feel deflated and even "jiggly" in the evening. This is definitely one of the "weird and weirder" symptom finalists on my list. I'd love to see someone compile that list. It would be both hilarious and encouraging that I'm not totally losing my mind in all of this! Thanks again to all who contribute to this site!

 

Love to all! Heather

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Hi Heather,

 

 

 

From one fellow nurse to another welcome!!! We're very glad you've found us, but sure sorry it's due to your illness. I hope that some doctor is able to correctly diagnose you. As a nurse I'm sure you'll be able to add a lot here giving great advice, in addition to getting the support you need.

 

 

 

Again, Welcome!


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Welcome! Yeah, that's exactly it, it is like it happens when they get deflated...even then though it seems there have to be some other specific things that are just so...lol. Yup...weird....& interesting...lol

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