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razz

Skeletal changes

5 posts in this topic

This is a topic I haven't seen. Maybe it's been covered. I'm aware of the osteoporosis caused from taking steriods or from going into early menopause. I have osteoporosis and am taking monthly bone building medication and calcium supplements.

 

My question has to do with other bone structures. When I began developing SD symptoms, one of the strangest was the jaw bone on my left side, where it ends, started to feel lumpy. It didn't feel soft, it was hard bone. After 10 years withSD it's not noticeable any more. Now, I have noticed my skull feels like it has 2 ridges and a slight dent. Thank goodness for hair cover because it's not noticeable. When I comb my hair or shower I can feel the ridges. Has anyone experienced this?

 

Curious,

Razz


Live well, Laugh often, Love much

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Hi there,

 

well I have absolutely no medical training at all, and I certainly am not an expert on this area, but when I talked with my rheumatologist, he said that scleroderma does not affect the bone itself. That's all I've ever heard about this topic.

 

Take care,

Emmi

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Razz,

I totally missed your posting. We have a pretty large section on skeletal involvement in scleroderma that you might want to look at. The ones I remember are bone reabsorption, some dental involvement, and osteoporosis. In fact there have been some recent findings about scleroderma and osteoporosis. You'll find them on the osteoporosis page.

 

I'm not sure how common any of these are and like Emmi, my rheumatologist has never brought it up so I've never really thought about it.

 

Hope this helps.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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hi razz , I have exactly what you described , deep indentations on my skull one got so deep that I thought it would go thru to the brain ! but after months these indentations start to close again and come up else where on the skull , also the bone in my face around my eyes and nose hurt like mad as do the muscles and skin over them the specialist done a neuclear bone scan and it came back with lots of what they refer to as 'cold spots' the immune system is attacking my skull,face bones, both collar bones a couple ribs ,couple vertibrae ,both knee caps and both heels ........ but not any of my joints or other bones , so I guess here the messagae is that this sclero has a mind and will all of its own and just invades how ,when and where ever it wants !!!! I'm so relieved that someone else has this to ......hugs georgette

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Thanks, Emmi, for responding to my post. We always learn so much from each other. This is the best exchange of information I know.

 

Janey, I appreciate you listing those bone related subjects. I will have to pull those links and do some reading! :)

 

Georgette, Thanks for reassuring me that I'm not losing my mind! My ridges are not deep but I do know they weren't there before. Thankfully they don't bother me, they just feel weird! Your right, scleroderma sure isn't picky about what part of the body it wants to invade.

 

 

Hugs everyone!

Razz


Live well, Laugh often, Love much

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