Jump to content
Sclero Forums

Recommended Posts

My primary care physician nurse just called & said that the Radiologist's report (from Tuesday's barium swallow) said esophageal motility dysfunction & CREST & referall back to rheumatologist.

 

I wondered if he studies those further than watching the test because immediately after he said he didn't see much. Anyways, what a relief... bittersweet one, but I have known long enough now that it isn't news to me anymore, just a relief that maybe some will stop with the "you look fine" & "you're always going to the dr." stuff.

 

Of course, with the way this stuff goes, I'll go to the rheumatologist & he'll say something completely different...lol.

Share this post


Link to post
Share on other sites

Hi love, I'm happy that you are finally getting some answers. I didn't know that they could say it was Crest just from the barium swallow. My Dr. told me I have the esophagus of someone with sclero but I've never gotten a diagnosis yet. It's so frustrating. I hope that the rheumatologist can give you some answers, and some relief.

Take care,

Hugs, Piper

Share this post


Link to post
Share on other sites

I don't know that they make a CREST diagnosis from just a b.swallow, but he asked me if I had Raynaud's & stuff & we talked a minute about my symptoms after he performed the test, so I think that is how he came to that.

Share this post


Link to post
Share on other sites

Hi Luvmom -

 

 

 

Isn't it funny what a relief it can be to be able to put a name to something? Even though it's not something you want to have, it gives you a bit of peace of mind that you weren't going crazy!

 

 

 

I'll look forward to seeing what your rheumatologist says.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

You are so right, bittersweet! At least you know it is not in your head and you now have a diagnosis you can work with!

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi

 

Yes, we certainly never know what the doctors will say...it will be interesting to see what your rheumatologist says. Will you be going to a new rheumatologist or one that you have seen before? You'll have to hone in on the barium swallow question for us...I didn't know that could show anything either, interesting?


Sending good wishes your way!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×