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Hi everyone, I was diagnosed with systemic sclerosis a few months ago. I have the diffuse variety of the disease. I posted once because this whole thing is so frighteing, and got much comfort from all of the responses.

A week ago, my doctor informed me that I also have secondary hyperparathyroidism. I guess that's just another candle on the cake at this point, but I was wonderig if anyone else had gotten that. or is it totally unrelated ? I haven't read about anyone else having it. maybe I missed it if someone ele did indeed post about it. According to what I have been looking up about the disease, it could be related.

I've been having another real problem having to do with the coughing. I guess it is from the gurd. I am confused because I am coughing up so much mucus, enough to fill a cup at night. My lungs are clear according to the ct scans. My throat feels like itis closing up slowly. Small pieces of food get stuck. I tried the wedge pillow but it doesn't work for me. Are there anyother suggestions? Does anyone else havehperparathyroidism ?.......Donna

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Hello Donnf, there has been some talk in the past couple weeks of thyroid problems. I had hyperthyroidism (thyroid toxicosis) and my thyroid gland was destroyed with radio active iodine. I-131 pill. Very potent medication that put me into hypothyroidism. Thyroid problems are one of the many autoimmunine diseases.

One of the only suggestions I can offer you for helping you with acid reflux is to sleep on your left side. The way the stomach is positioned in our bodies the back flow of acid has a harder time of getting into the esophagus when you are on your left side. Hopefully others will give you clues on helping with the swallowing issues. I have found a few sips of hot tea help with the chokeing or the feeling of food getting stuck in your throat works quite well in clearing my throat. I don't like tea but someone told me to try it when food gets stuck. It works, at least it did the couple times I tried it.

Strength and Warmth,



Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Hi, Donna. So sorry to hear you are having to deal with more candles. I am not a doctor, but this article on Hyperparathyroidism from MedicineNet.com is quite thorough and should be of some help explaining things. According to the article parathyroid glands are located along the sides of the thyroid. Though their names are similar, the thyroid and parathyroid glands are entirely different glands, each producing distinct hormones with specific functions, all explained well.

Secondary means that it is caused by some other condition. Talk to your doctor about what may be the cause and to make sure you are getting appropriate treatment.

As for the GERD (GastroEsophogeal Reflux Disease), our page on Reflux (Heartburn) and GERD has a wealth of information. You will also find discussions of reflux in many threads on the forum.

Warm wishes,



Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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