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razz

Time to celebrate

54 posts in this topic

Razz,

 

I was too anxious to find the previous post so started a new one. I finally found my book in the mail when I got home today from work and taxi'ing my sons! It is absolutely amazing that you were able to penn your experience so wonderfully. I just finished the book and I have so many emotions running through me right now. Over the past couple of hours I have laughed, cried, smiled and frowned (at the 1st Dr experience). I don't even feel well, but just couldn't put the book down. Your spirit, strength and determination was and still is phenominal. It sounds like you have wonderful daughters and a great family. The right people were also placed in your path during your stem cell quest. I also enjoyed the pics you included as well.

 

I highly recommend this book to anyone who loves to read and wants a great insight to one persons journey with Sclero. Again, kudos to you Razz and thank you for your words! I'm going to purchase a copy for my Dr, mom and brother. I'm going to share my copy with friends.


I may have Scleroderma, but Scleroderma doesn't have me!

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Smac0719,

 

I get excited too when I get feedback! I feel like a student getting her thesis graded. My niece Kristine, is 30 something and we've lost touched over the years, but see each other at family get togethers, told me she couldn't put it down and when she got off the train, sat in the parking lot for 1/2 hour to finish reading it. Then her daughter, Alicia, she's 9, saw it on the coffee table and was tickled to see she knew the author. She's been reading it and learning a lot about her auntie. I enjoy knowing my nieces and nephews see me in a different light, as someone who overcame a deadly challenge and continues to overcome any challenge I meet.

 

The right people were put in my path. I don't want to ramble on, but I do appreciate your comments. You made my day too! It's so dreary and gloomy right now. Lot's of grey skys and lots of rain. I'm trying to motivate myself out the door into this rain to go to a baby shower. I know once I get there it'll be fun.

 

Please do pass my book on to others. I even enourage anyone who doesn't have an illness to read it. Because it's not just about a disease. It's about recouping and revamping once you've been dealt a whole new life alteration. It's making adjustments and surviving one day at a time with help along the way.

 

I'm glad I could make you laugh and smile. Some pictures I would have taken to the grave with me but vanity went down the drain along with my diagnosis. Don't get me wrong, I do like to dress up, get a nice hair cut and put a nice color lipstick on :blush: . Confidence helps you hold your head up high no matter how we look or feel physically! ;)

 

Thank you so much. You've also reminded me I shouldn't get lazy but stay focused on the awareness factor!

 

Lots of hugs,

Razz


Live well, Laugh often, Love much

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hi razz,,,

thats great to hear welldone take care and look forward to reading it :rolleyes:


live life for today and not for tomorrow

 

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Thank you Laxs. Glad to see you're back posting on the board!

 

 

 

Hugs,

Razz


Live well, Laugh often, Love much

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