Jump to content
SCLERO.ORG
Sclero Forums

Time to celebrate


Recommended Posts

Thanks Bowbec!

 

I appreciate your kind words of support! I guess you can say I have thick skin (pun intended) and didn't have many options left. Thank you for reading my story! There are so many of us affected with autoimmune diseases that the more attention we bring to our cause, in turn will create increased interest and research.

 

Hugs,

Razz

Link to post
Share on other sites
  • Replies 53
  • Created
  • Last Reply

Top Posters In This Topic

I am axiously awaiting the arrival of my book. I got an email that it was shipped on Monday and had high hopes that it would be here by today. Going out of town for the holiday weekend and wanted to take it with me to read. Oh well, hopefully I'll have a surprise in the mail when I get back. I feel like a kid waiting for a present! :P

Link to post
Share on other sites

Smac0719,

 

I'm glad to hear it's on the way! I'm even more excited to hear you're going away for the holiday weekend. I hope wherever you're going there's plenty of relaxation and fun! (I like getting packages in the mail too.) :lol:

 

Hugs,

Razz

Link to post
Share on other sites

Thanks Leslie,

 

It’s a biographical journey about my life beginning with my mid-20’s and leading up to my diagnosis with scleroderma. Shelley Ensz’s Post 37 of this thread gives the title and link.

 

Hugs,

Razz

Link to post
Share on other sites
  • 2 weeks later...

Razz,

 

I was too anxious to find the previous post so started a new one. I finally found my book in the mail when I got home today from work and taxi'ing my sons! It is absolutely amazing that you were able to penn your experience so wonderfully. I just finished the book and I have so many emotions running through me right now. Over the past couple of hours I have laughed, cried, smiled and frowned (at the 1st Dr experience). I don't even feel well, but just couldn't put the book down. Your spirit, strength and determination was and still is phenominal. It sounds like you have wonderful daughters and a great family. The right people were also placed in your path during your stem cell quest. I also enjoyed the pics you included as well.

 

I highly recommend this book to anyone who loves to read and wants a great insight to one persons journey with Sclero. Again, kudos to you Razz and thank you for your words! I'm going to purchase a copy for my Dr, mom and brother. I'm going to share my copy with friends.

Link to post
Share on other sites

Smac0719,

 

I get excited too when I get feedback! I feel like a student getting her thesis graded. My niece Kristine, is 30 something and we've lost touched over the years, but see each other at family get togethers, told me she couldn't put it down and when she got off the train, sat in the parking lot for 1/2 hour to finish reading it. Then her daughter, Alicia, she's 9, saw it on the coffee table and was tickled to see she knew the author. She's been reading it and learning a lot about her auntie. I enjoy knowing my nieces and nephews see me in a different light, as someone who overcame a deadly challenge and continues to overcome any challenge I meet.

 

The right people were put in my path. I don't want to ramble on, but I do appreciate your comments. You made my day too! It's so dreary and gloomy right now. Lot's of grey skys and lots of rain. I'm trying to motivate myself out the door into this rain to go to a baby shower. I know once I get there it'll be fun.

 

Please do pass my book on to others. I even enourage anyone who doesn't have an illness to read it. Because it's not just about a disease. It's about recouping and revamping once you've been dealt a whole new life alteration. It's making adjustments and surviving one day at a time with help along the way.

 

I'm glad I could make you laugh and smile. Some pictures I would have taken to the grave with me but vanity went down the drain along with my diagnosis. Don't get me wrong, I do like to dress up, get a nice hair cut and put a nice color lipstick on :blush: . Confidence helps you hold your head up high no matter how we look or feel physically! ;)

 

Thank you so much. You've also reminded me I shouldn't get lazy but stay focused on the awareness factor!

 

Lots of hugs,

Razz

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


×
×
  • Create New...