Jump to content
Sclero Forums
jlf

One Of Those, 'do You Know Questions'

Recommended Posts

Hello to all,

 

I went to the gastro yesterday - because I have gastroparesis. So far nothing has worked to relieve my nausea. His suggestion was a medication that comes from Canada, Domperidone - I wondered, if anyone in scleroderma land has tried this? His next option was botox injections during EGD targeting the pyloric mucle - I have read these work but only for about 5 months - has anyone had this?

 

Your input is always appreciated,

JLF

Share this post


Link to post
Share on other sites

Jlf, Have you tried Colestid. That is what my doctor prescribed for me. I take 6 a day. If that one didn't work I was going to have to get Domperidone from Canada. My Gastro doctor has an US license and a Canadian license. I'm glad the Colestid is working. I haven't heard of the Botox injections. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hello JLF, I have tried Domperidone, made me feel worse. I do know the author, who wrote the book "The first year Scleroderma", (Karen Gottesman), I spoke with her at a conferance in LA, and she did say, at that time, she was on it and it was working well for her. That was a few years ago, so I don't know how she is doing now. I tried Reglan and a few others, all of these meds had bad side affects for me. I do have Nausea off and on, and I take Compazine, it seems to work for me sometimes. I also use an OTC product as needed. I hope you find some relief soon. Take care.

 

Jackie S.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


×
×
  • Create New...