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Marie W

Confused About Medications

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I just got a 2nd opinion from another Rhemy. Now I am more confused. The "2nd opinion" wants to change all my medications! I feel like some of it is finally helping, especially with the joint pain. (I have been on meds for 2 months now). I am currently taking 200mg Placquenil twice a day, 10 mg Prednisone, 15mg Mobic, 325mg aspirin, and 800mg Motrin as need. I am still in the process of having all the additional testing that goes with diffuse scleroderma. I have already had a pulmonary function test and an MRI, but I don't know the results yet. The additional testing will be done next month. Would someone with diffuse, please e-mail me and let me know what meds they are on and what helped and didn't help. I realize everyone responds differently to medications, but at least knowing what other people are taking would ease my mind.



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Hi Marie,


I'm sorry you are going through all of this. This disease can be very confusing, especially since everyone is different, has different symptoms, and reacts differently to meds.


I'm on Plaquenil 400 mg per day

Prilosec for GERD

Arthrotec - anti-inflammatory

A sleep medication - used occasionally for sleep

A muscle relaxer - used occasionally for severe muscle spasms


And a host of other alternative care supplements and herbs.


I'm sure others will chime in with what they are taking as well.


Good luck to you!

Warm and gentle hugs,



ISN Support Specialist

International Scleroderma Network (ISN)

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Sorry that you are in that state of confusion that seems to accompany this disease. Right when you think you've got it figured out something else gets thrown in mix. A constant learning curve.

To answer your question - I do have diffuse as well as polymyositis so here's my meds.

Methotrexate and low dose prednisone for 3 years. Now off both

Imuran for 3 weeks - very bad reaction

IVIg infusions every 6 to 8 weeks. Working great!

Other meds for my specific symptoms.

Monday I meet with my rheumatologist to decide on a different immunosuppresant.

Let us know what your new rheumatologist switches you to.

Hang in there.

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hi Marie,


Please see below for my meds.


Best wishes,



Updated 8/10/07: Mixed Connective Tissue Disease (dx 03/2002). Diffuse Scleroderma, Dermatomyositis.

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