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Just got off the telephone with Dr. Fisher at Emory Univ. Atlanta & he said my doppler of the heart was NORMAL!!!! Yeah!!! There had been talk about dystolic dysfunction on one of the previous tests and then I was put on Bystolic (drug in US from Belgium) and then the doppler echo & either the meds working and or the heart is OKAY ... what WONDERFUL news! He thinks the shortness of breath is coming from muscle exhaustion around the lungs ... hence sob, pain, hyperventilation ... but that's way better (I think :blink: ) than having the heart affected!!! :) I'm just SOOOOOOOOOOO excited!!!! :P Best news yet!!!!!!!!!!!! Let's have a party at my house!!!!!!!!!!! :D

 

Back to normal now!!! If someone can tell me what that is!!!

 

All I know is I am so glad to get and share such good news with all of you who have been there for me when I was so down and out & suffering so. Thank you for being a part of my world (even if I don't post ... I do read!)

 

Love to all,


Soft hugs your way,

 

Michele

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Congratulations on your great news!! I'm sure that it is a big worry off of your shoulders. It's great to get good news as it seems that most of the time the news we get isn't all that good. Have your party and celebrate!! You deserve it!!!

 

Warm hugs,

 

Peggy

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Hi Michelle ,

 

Thanks for putting a smile on my face!!! Your happiness came through!!! Congratulaions on having a good & strong heart.

 

Take care, Everyone.

Margaret

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Hooray! Don't you just love good news for a change? What a releif. Congrats on the good news. :) One thing to check of the worry list.

 

Karen

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Excellent news Michele! That is worthy of a celebration.

 

I'll be in ATL this time next week for the weekend. I love it there. I lived there for 4 years during my high school and college years. You actually can see the seasons change and experience them. Unlike in Florida where our seasons are hot and hotter!!!


I may have Scleroderma, but Scleroderma doesn't have me!

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Congratulations Michele ~ that's wonderful news. Now go on and have that party, you deserve it!!

Much love,

Nina

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Great news Michele!

 

I don't want to be a downer but have they checked your lungs to actually see why you are short of breath?

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Lisa, Dr. Fisher is leaning towards muscle fatigue. I didn't really understand, but he said sob can be caused by many things. My PFT showed reduced capacity but transfer was normal. This is much different from past PFT's and he said I was actually improving! But he felt the constricture causing the sob was the muscles around the rib cage. I'll talk with sclero dr 8/12 & see where we go from here. I'm just so happy they don't think the heart is the problem!!! I do have PAH but Dr. Fisher said he wasn't going to worry until I got over 40 sustained - I'm at 34 - and if he doesn't worry, I don't worry. He's one of the best doctors I've ever seen who looks at the whole picture not just the symptoms presented. THANKS for ASKING the question! But more ... THANKS for CARING! You all are so good on this board!


Soft hugs your way,

 

Michele

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Congratulations! Any good news is news to celebrate! You must be so relieved! It is always a great day when you receive positive news from a doctor. You can't have enough of those days. Your good news makes else happy because they get to share in your news. Thanks for posting. If you are allowed and it works for you EAT CHOCOLATE!! It always works for me. In fact I consider any good news a reason to indulge and so I will have some in your honor!


Smurfette

 

Chocolate, It isn't just for breakfast anymore!

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It really is fun having something positive to share & I'm with you smurffette - chocolate for any reason! However this is my husband's birthday weekend & it's going to be cheesecake for my calories - smells so good in here from baking!

 

Thanks for all the positive feedback everyone!


Soft hugs your way,

 

Michele

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