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Vee

Another ? About Disability

7 posts in this topic

Hi Everyone!

 

Sorry I've not been around for awhile. I've been very busy at work and with the kids school activities, and when I'm not doing that I'm trying to get the "hurt" out of my feet!

 

My sclero specialist from U of Mich. called me at work today to tell me that she talked to my rheumatologist, and they decided that I have "erosive arthritis" and she wants me to research the drug Rituxan this weekend, before I see her on Mon., and she also said that it would be a good idea to get my disability papers rolling! I've been fighting this for a long time, I guess I'm afraid that they will actually be "Okayed"! I don't want to quit working, but my feet hurt so bad by the end of the day, that it's all I can do to get in my car and drive home. So, I guess my question is, can you work at all when you are on disability? Is disabiltiy the same as Social Security? I'm such a dunce when it comes to all this legal stuff.

 

Any who, any replies are greatly appreciated!

 

Warm and Happy to all of you! xo Vee


Happy people don't have the best of everything, they just make the best of everything they have!

 

Warm and Happy to you! Vee

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Bummer! Don't we just hate those doctor calls!?!? Sorry to hear the news but I know that you'll work through this one like you always do. I don't have experience with disability but here is the Q&A page on disability from the Social Security website. I hope this helps.

 

Hang in there Vee and let us know how you are doing and how this process progresses.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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(((((((( Vee ))))))))

I wish I could do that in person!

I know how much you want to keep working! I aplied for this just a bit ago. As you knw I am not working so I dont know the answer to your question. I personaly feel that working of great if you can do it and still have a normal life at home, but if working is taking engery away from for your family, then is it really worth it? You do so much for your family, now its time to relax and try to stay as healthy as you can for as long as you can. If you want to work, do some work at home.?

Love ya!!

Patty


Hugs,

Patty

 

If Life hands you lemons, make lemonade.

 

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

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Hi Vee,

Glad you stopped by..... I am so sorry that you are now faced with another diagnosis and you are on your way to fight with social security. Hopefully since your dr advised you to file it will be an easy smooth process and it will get approved quickly. If you haven't already done so, please apply for your disability placard for your car. It will help you tons especially in the cold weather. You can download a form from your states website and just have your dr send it in for you.

 

As for the disability: Once this gets approved you will earn "x" amount of dollars every month. This monthly payout is based on how much you have paid into the system. You can still work and earn up to $800 a month I believe before your benefits are affected. This number may be different on a case to case basis.

 

Medicare is health insurance through Social Security. Now I am on disability, but I have full health benefits through my husband's employer. I only receive Medicare part A (hospital only) benefits. There is no cost to receive this. Basically Medicare A is my primary hospital insurance for an inpatient stay, they pay all but my Medicare A deductible. My other insurance will pay the rest. Medicare B is everything else. Doctors, labs, ambulance etc.... There is a Medicare monthly premium for this. I declined this benefit because I have other insurance. If you do not have other insurance you will need to take this and they will automatically deduct it from your check each month.

 

If you have any questions, please let me know. Feel free to email me and I will answer them the best I can. Also, let us know how your visit goes on Monday!!

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Hi, I am new to this place, but have been a member of the msn group. I applied for disablity after I could no longer work, and got approved for another reason than my sclero... very depressed... but anyway, when I got the approval letter, they said I was considered disabled even when I was working because I was working so little and got so little money. That surprised me, but it did lessen the time I was to wait for my first check. You have a 6 month waiting period, but it started 4 months before I applied! So that is what I know about working while applying for disability. Lyn

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Hi Vee,

 

It sounds like others have answered your questions, but I wanted ti chime in and tell you how sorry I am that you have now been diagnosed with erosive arthritis and are in so much pain. That is definitely no fun! And, I am sorry that now you are being faced with the prospect of filing for disability. I do hope that it wil go smoothly for you and that everything will fall into place. I stopped working this past August (July 31 was my last day) and I have never been happier. It helps so much to know that I don't "have" to be somewhere at a certain time and day and if I wake up and feel badly, I can allow myself some rest and not have to push. It really has made such a huge, positive difference in my life. I hope that you will find the same.

 

Warm wishes,

Heidi

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Thank you all for your advice and kind words! And the info is priceless to me, it helped a lot! BUT!!! as for now, I'm putting the disability on hold just a wee bit longer, as my rheumatologist just put me on the lowest dosage of predisone, she said it should help with the pain. So I'm just gonna give it a few months to see what comes of it! Who knows. I know I'm just prolonging the inevitable. But I need to know that I've exhausted every possibility. Thank you all again for being here when I need you!

 

Stay Warm! :D Vee


Happy people don't have the best of everything, they just make the best of everything they have!

 

Warm and Happy to you! Vee

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