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smurfette

Can we pass any of this on to our kids?

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I was just wondering if there is any part of all this that can be passed onto our children and if so, what kind of tests do we need to put them through to watch them and keep them as healthy as possible? Has anyone ever studied the issue of heredity? How does it manifest itself in the next generation?


Smurfette

 

Chocolate, It isn't just for breakfast anymore!

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Hi Smurfette, I don't think anyone is really sure whether Scleroderma is hereditary or not, some people are more disposed to getting this than others. Environment also plays a huge factor.

 

I have a four year old, which I hope doesn't ever get Scleroderma, of course I will always look for any signs and am very careful regarding chemicals and dust around both him and me. Personally, my husband and I will not subject him to any screening tests or blood tests unnecessarily unless we absolutely had to.

 

I think we all would like to know for certain whether this is hereditary or not, we can only guess for the time being.

 

Take care

Celia

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Hi Smurfette ,

 

This is quite interesting since it is my 20 years old son who has the UCTD......not me or his Dad. I always wonder if the connection is from the transfer of placentia blood (as some have suggested) does that mean I will develope Sclero/UCTD? It's a good topic for discussion.

 

Take care, Everyone.

Margaret

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I often wonder if I will pass this on to my little girls, There is some interesting information here: genetics Scroll down to: Familial Progressive Systemic Sclerosis (FPSS)

Familial Progressive Scleroderma is a form of systemic scleroderma that is known to be hereditary.

There are also more interesting articles to read.

Hugs,
Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

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Margaret, my 27 year old son may be showing signs of scleroderma. The doctors think my disease passed through the placenta blood on to him. He is being tested for several disorders including carpal tunnel and raynauds. My other two sons that are much old have shown no signs. I wasn't showing signs of sickness with them.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Hi Everyone,

 

If I am not mistaking, there are several who chime in with a family history of Sclero. It is amazing to me that everyone has different symptoms/severity, etc. Why do some of us have kids with sclero and, yet, there is no one else on either side of the family with it? It is a very complex puzzle!!!

 

Take care, Everyone.

Margaret

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Lisa, I also hope it isn't a sign of things to come.

 

Margaret, there hasn't been any signs in my family either up until lately. Different relatives say "oh, aunt so and so had that on your mothers side". Then at age 80 my mother's, doctor's are finally starting to say she has MCTD. She has many of the same symptoms as I have but has never been given a true diagnosis. She didn't start getting many of the symptoms until the last few years. After having thyroid surgery she started showing other symptoms. Now she is recovering from twisted bowel disorder. She had surgery and is doing well. Sound familiar.

I guess we may never really find out the true culprit of our disorders. As long as we get better cures and quicker diagnosis'.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Sheryl,

That has been my experience too. When my sister was diagnosed with lupus we started looking into family health history. Sclero, lupus, etc. hadn't been defined at that time, so the problems were just called arthritis or something on that order.

 

Christy


Love makes the world go around!

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My aunt has sclero and also my cousin has lupus and another cousin with poly? spelling I know it's in the sclero family, I guess a research center would have a field day with my family, ..

 

I have 2 little kids and I hope I do not pass them on to it....

 

kellyA

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<<Sclero, lupus, etc. hadn't been defined at that time, so the problems were just called arthritis or something on that order. >>

 

Christy ,

 

You are probably right about this. My Dad had Rheumatoid Arthritis.....that is the only autoimmune disease, though, on either side of the family.

 

Take care, Everyone.

Margaret

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Hello All,

 

I am of the opinion that autoimmune diseases must be hereditary, I have 4 of which two are raynaud's and SSc, my identical twin has follicular lupus and fybromialga, my mother has fybromialga and raynaud's and my maternal grand mother had psoriasis. Cleary the gene pool of pain and death can't be a coincidence, can it?

 

There must be a family predisposistion to autoimmune diseases the same as there is for cancer or heart disease.

 

Well that's my theory anyway but as it's just based on my freaky family you're unlikely to find anyone else supporting it.

 

Take care.

 

Amanda :lol:


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

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(Retired) ISN Sclero Forums Assistant Manager

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International Scleroderma Network (ISN)

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My mom has rheumatoid arthritis and shingles. She was suspected to have lupus a few years ago, but nothing was conclusive. I have a maternal cousin and a paternal aunt with lupus. It makes you wonder...............


I may have Scleroderma, but Scleroderma doesn't have me!

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It does make me wonder. My grandmother (who died before I was born) was crippled up with arthritis and could not get out of bed. She was also skinny as a beanpole. She lived on a farm in the deep south and they didn't have good access to doctors. It makes me wonder if she really had arthritis or if it was sclero or even polymyositis.

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My mom has limited scleroderma with sgjornes. She is 87 and still plugging. She never gave up and wouldn't take no from doctors.

I have mixed connective tissue disease with lupus/sclero mix. My daughter started ccoming down with symptoms when she was 13. They have been mild and tend toward Sgjorne's syndrome more that lupus. She has alot of my problems showing up. It breaks my heart but she is doing well and learning medicine.

So yes, I believe it is very inheritied. Susie54

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