georgette

Fatigue is ruling my life !

22 posts in this topic

Nan:

 

I know when I'm overdoing it; I could feel from the neck to the middle of the back begin to arch and ache. That's the time I'll sit and take a breather from whatever I'm doing.

 

I had the washer/dryer moved from the basement to the kitchen (thank goodness I have a huge kitchen). Now I realize I should have done it years ago, just for the convenience from when the kids were little and there was so much laundry! I also keep a counter stool in the kitchen to sit on when cooking at the stove for long periods or just meal prep in general at the counter tops. I also had the plumber put an automatic water feed on the boiler so no more going up and down the stairs to check the water level. Still waiting for my son to come over to move the modem and router upstairs for the computer so I don't have to venture down the steps to reset them after a good storm.


Tru

 

It is what it is...........

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Yes, I do occasionaly feel super tired for no good reason. And to make matters worse, lately I've been exhausted all day and up and awake all night.

Since the UCTD I think the fatigue from the tightening takes it's toll just living normally day to day, and the automatic strain from the tightness must be causing it. My neck has been particularly tight the last few weeks and I can literally feel the CT and tendons pulling like tight rubberbands right thru my skin. Hopefully the plaquenil will bring releif from that at some point. I am 3.5 months on it, and don't feel much help from it yet. Can't even bend down enough to paint my toenails. :(

 

So, I do what is necessary, like making the bed, fixing hubbys lunch, grocery shopping, and making dinner. And other misc things like laundry and dishes. But I try to spread it out and not do everything at once. The one thing I find very difficult is cleaning the bathroom as that involves a lot of bending and crouching on my knees. And the scrubbing does a number on my hands.

Maybe I'll call a maid service next time :D

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I have noticed that I am subconsciously planning my day and trying to get things done when I know I will be up to the challenge. This is usually right away in the morning so I try to get what I need done right away. Then I know that around 10 or 11 in the morning I can have my first rest. Then when it's time to make hubby's dinner I am subconsciously eagerly awaiting my afternoon nap. I am seeing that on some days this can be the entire afternoon but I have quit trying to fight it. I used to fret and kick myself for not getting anything done but I have come to realize that if this is what my body needs then I do it. I have gotten better in realizing that things will wait and the world won't end if doesn't get done right now. This is pretty hard for a perfectionist to do but I am trying. Some days I win that battle and some days I don't. I have also realized that I can no longer mow the lawn and have reluctantly relented and have hired the neighbor boy to do it. I have tried to just mow the front once and while and pay dearly for it so have quit doing it. I know what you mean when it comes to socializing as I have actually had people tell me that I'm not very engaging and ask if I'm ok. I just tell them that I'm really tired and not feeling so well. I feel bad but I can't help it. I can honestly say this fatigue thing lately is really kicking my behind and I'm trying to do the best I can and trying to quit fighting as it doesn't do any good anyway.

 

Warm hugs,

 

Peggy

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You know what? You guys are awesome!!! All of your comments have not only I'm sure been helpful to Georgette, but to me also. Fatigue is one of my BIGGEST problems. I had my rheumatologist appt yesterday and spent the majority of my time talking about that. You guys were more helpful!!!


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Maybe we're missing the whole thing; we're just sleeping beauties :lol: . What's not to love? :)


Tru

 

It is what it is...........

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hi everyone yes sweet you are right everyones response sure made me feel a lot better , I also didn't realise that I do actually feel a bit guilty laying down through out the day !!!! now after reading all your responses its like I have been given permission to give into the fatigue at times and rest when needed , it is so hard trying to keep up with all my healthy friends but now I have realised (also spoke to my doctor about this ) that not only me but friends and family have to change their thinking and everyone has to learn to renegotiate "OUR" lives , all those in my inner circle have to adapt to my illness just as I have to adapt ,other wise friendships will crash , so I have started this already , with each person I speak to ( I dont go on and on about it ) but I make it clear that our lives wether it be friendships or family have to readapt and change or perish ,and I am astounded at how this termanology has gotten thru to everyone , its like they are hearing me for the first time, they are starting to get it !!!! yay thankyou all ,your responses and your own personal experiences helped me do a 360 degree turn around for the better thanks everyone hugs georgette

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georgette

You go girl! No more guilt! I am so proud of you! You stood up for yourself and are taking care of yourself and doing things on your own terms! Way to go!!!


Smurfette

 

Chocolate, It isn't just for breakfast anymore!

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