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Karenlee

Mouth sore

8 posts in this topic

Hi all. Well yesterday I noticed a sore in the back of my mouth where my jaw meets. It's not so much a sore as a chunk of meat that sticks out. When I touch it with my finger it's sorta lumpy. Was having a hard time trying to eat dinner. I got canker sores when I was younger all the time. Not sure if its that or a new sclero symptom. I read Johns thread on his mouth sore, although mine is more like lumpy tender skin. Kinda feels like cauliflower. I saw some good ideas to at least block the pain until it heals.

 

Anyone else get these lumpy meaty things in their mouth?

(my apologies for the description, but it's hard to explain) :P

Karen

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Hi Karenlee, I have those places in my mouth. Sometimes I think I bite them and it makes a sore. I use peroxide on a Q-tip and it seems to help it heal faster. Good luck with yours, Birdman


Hugs for All,

 

Julie (Bird Lady)

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Thanks Birdman. I'll do that tonight. Just got back from the store and bought some oral anesthetic. It numbed it for about 10 mins, then back to pain again.

 

Karen

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Karen,

Last month I had another mouth sore every day. It was getting very difficult to eat and even brush my teeth. The I remember when I was taking methotrexate, my rheumatologist prescribe folic acid. He told me that one of the purposes of the folic acid was to prevent mouth sores caused by the MTX. I happened to have some folic acid so I started taking it. Within three days the mouths sores were gone and haven't returned. You might want to ask your doctor about it.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Janey,

 

Thanks for the advice. I have actually been on folic acid (prescription strength) for a few years. My OBGYN put me on it when we were trying to conceive, so maybe if I hadn't been on it, the sores would have been worse.

 

Again, thanks for your input.

Karen

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Karen,

So sorry to hear about your mouth sores. They can be painful and since they get swollen I always keep biting down on them which can only make them worse. I don't know about why they are caused. But I hope that you can find relief soon. Are you sure that it is not the end of a wisdom tooth cutting through? I had a bit of that going on in my 30's and it was painful and felt similar to what you are describing. My jaw ached as well as having some floppy skin.

 

When I get cold sores or ulcers in my mouth as a result of a cold or when I am run down my doctor told me they are as a result of the herpes virus (similar to chicken pox and related to the one that can be passed like a STD) that I have had forever. I use either the numbing stuff I used on the kids gums (anbesol) or the gels that are OTC with a numbing ingredient (oragel?) that last for a bit longer than the numbing stuff for teething. It sems to reduce the pain as long as you can keep from biting it again. There are some prescription meds that you can get that you can apply to the area that will numb you for longer. Maybe your doctor will be able to order some for you. I am sorry that you are suffering. I hope to hear that you are feeling better soon! I hope that you heal very quickly and are able to have a wonderful meal soon!


Smurfette

 

Chocolate, It isn't just for breakfast anymore!

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I have never had these and I'm so sorry you do. I have had the canker sores and they are bad enough so I can only imagine how bad this must be. I wish you good luck on getting rid of this!!!!

 

Warm hugs to you,

 

Peggy

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Hi Karen,

 

I have those too, they come and go in two specific places in my mouth. My rheumatologist looked and said they are inflamed telangiasticas! Some people on this list have talked about them bleeding so I know they can come quite close to the surface. What I do when they flare is to use listerine and peroxide. One after the other, twice a day. I also learned a trick when I used to get millions of canker sores, I take 1000 mg of lysine every day and up to 4000 mg during a flare. If I miss a day or two, the sores come back. Good luck with this I know how bad it can be. Oh and theres an OTC mouth wash I forget the name but that helps a lot too. Ask your doctor about the lysine though, it's a lifesaver.

Karen

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