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isobelle44

tight skin

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I was wondering, I have morphea for alittle over a year, So far no raynauds, my skin looks (from what I understand) looks like diffused scleroderma skin, i have been through uva treatments which helped alot in some areas, i have finished the treatments the beginning of june and waited 6 months to see if it continued to soften my skin, and it did some, my dermatologist put me on plaquinil to help it along that was 3 weeks ago. Since then I have noticed my skin seems tighter, my face seems tighter, and neck, abdomen, back, calves, also, my forarms feel slightly burny and my hands do to. Is this helping or not? I am not scheduled to see her till october but im not sure I should wait that long. Does it get worse before it gets better? I have seen so many people use plaquinil for so many different things. Has it helped you? Thanks Sharon

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Hi, Sharon. I am not a doctor, but I am taking Plaquenil. I have been told by my rheumatologist (and also by several people on the site who are taking it) that it takes up to 6 months before you will see any improvement from Plaquenil. I do think my fatigue is starting to lessen a bit and I am just about to come up on the six month mark. Have you seen a rheumatologist?


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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yes I have seen a rheumatologist a couple times. He doesn't think it is anything more then morphea but I sure feel like it could be, Thanks for letting me know it takes that long to get results from the plaquinil. I wondered, my doctor that gave me the prescription said it takes a long time, and I didn't ask how long. Ok I will be more patient.

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