Tonyia

I'm not sure what to think?

21 posts in this topic

Hi Tonyia

 

I hope you feel some tid bit of relief for all the tests they are running on you in amongst your fears. I know it's really hard, but also try not to scare yourself silly while you wait....so in other words, try not to fret at least until you know for sure that there's something to fret about ok (I know too well easier said than done :o but...). Keep asking your questions too, there's always someone here who can help. I hope you stay in touch and keep us posted on your results next week. Take care!


Sending good wishes your way!

Share this post


Link to post
Share on other sites

Tonyia, thanks for letting us know you went to your appointment and didn't flee. Your doctor will give you results and give you possible options on different medications that can help ease pain or swelling or possibly rectify some of your problems. If you have different autoimmune problems doctors work on helping you with the symptoms. We can't make the disease's go away and we don't know what has caused us in particular to get these diseases. We can learn to cope and go on and go forward and help each other on our down days, weeks or months. Do keep us informed and get your thoughts together that you can get through what ever is thrown in your lap.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Good for you! Going to the doctor is the first and biggest step. Did you get a chance to make a rheumatologist appointment or are you waiting till the test results come back?

 

We're all cheering for you!

 

JJ

Share this post


Link to post
Share on other sites

I'm glad to hear you went to the doctor. When you go back you might want to take someone with you so you have another set of "ears" to hear all the doctor has to say. I was by myself for the first time when I got my bad news and I know once she said that I had sclero and not a very good outlook that I didn't hear the rest. I was devastated and so overwhelmed I didn't even ask questions. This way someone can also be taking notes as they sometimes throw so much at you it's amost too much. Good luck and let us know how it goes.

 

Warm hugs,

 

Peggy

Share this post


Link to post
Share on other sites

Tonyia,

 

Any results from the tests, blood work, checking ANA's, thyroid etc...

Last we heard you were supposed to go back for results...

Hope all is well.

 

 

Bless!

Becky


Diagnosed with Diffuse Systemic Scleroderma May 2005

Raynaud's, GI, esophagus, skin and lung involvement.

Share this post


Link to post
Share on other sites

Hi Tonyia,

 

I am really glad to read that you've seen a rheumatologist and that the tests have taken place.

 

I hope they reveal some answers for you and your dr, because proper treatment is an important step to feeling better.

 

I really empathize with you and how you are feeling, but as many have mentioned in their posts, being your own advocate...if possible, having someone who can help take in the informations you will be hearing at appointments...is very helpful.

 

My best to you...I'm anxious to read what your tests reveal when you find out :D

 

Hugs,

Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now