• Announcements

    • Joelf

      Upgraded Sclero Forums!   05/18/2017

      Welcome to the Upgraded and Redesigned Sclero Forums!!   Our Forums are even better and more up to date than before.   Happy Posting to all our Members!!
Sweet

Any experience or thoughts on Provigil?

13 posts in this topic

Hi Again! Sorry I should have listed this with my other question, but my mind is so fragmented. Provigil is the other one I'm going to talk with my primary care provider on Monday. It's supposed to be very helpful with fatigue. Pain and fatigue are my 2 worst enemies.

 

Has anyone take it? Side effects? Cost?


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

I don't have direct experience of provigil, not having been awarew the fatigue could be treated.

 

Plesae advise how you get on should you take it as it would be most helpful to know.

 

Thanks.

 

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Sweet,

I know someone who is on it for narcolepsy (its original purpose) and it works for her. I have no knowledge of side effects or anything else. Good luck with it and do share your experience with the rest of us.


Smurfette

 

Chocolate, It isn't just for breakfast anymore!

Share this post


Link to post
Share on other sites

Fatigue has been the most intense of my symptoms until I started having arthritic pain of my fingers this summer. I finally got my doctor to take the fatigue seriously last winter when he found out I was falling asleep sitting up on the couch with my 2 yr old just 1 1/2 hours after getting up. It was also concerning that I would feel like I'm about to pass out (sort of a drunken type of drowsy while totally sober) while driving to the store during the day. He gave me Adderall XR which worked wonderfully but cost a fortune! (No generic form yet) My primary wasn't happy with me being on Adderall and had me try the provigil for a week or so. It helped some during the day, but I had trouble getting to sleep. Now I'm back to Adderall, but not the XR so I can get the generic. It's a small dose that I can repeat around noon if needed on those really bad days, but don't usually have to. It seemed strange to be taking a med for ADD when I was having problems with fatigue but it really helps me be alert enough to concentrate and focus. I hope this bit of info is helpful to anyone with unrelenting fatigue despite getting adequate sleep.

 

Warm fuzzy thoughts for all!

Share this post


Link to post
Share on other sites

I have been taking it for a few years, and like it a lot. I had problems with some of the other meds that help with fatigue, as they made me feel like I had just had 10 cups of coffee. I do however think that everyones biology is different, and I had issues with hypersomnia long before I had systemic sclerosis. Plaquenil also helped me a lot with fatigue.


keep on smiling

 

crawler

Share this post


Link to post
Share on other sites

Hi,

 

My doctor said Provigil works quite well for many people. He was a little nervous of my trying Provigil since I hardly sleep at night. He was worried I would never sleep - :lol: However, he gave me a free 7 day trial of the Provigil. they are 200 mg tabs and he told me to cut it in half, and take 1/2 in the a.m. and 1/2 around 2 pm. I am waiting to try it until after I am done with my 7 day trial of Lryica, so that if I do have side effect or adverse reactions I'll know which drug is doing it. So, in about 2 weeks I'll let you know how the Provigil is working for the extreme fatigue. IF I like it, and I decide to stay on it, it will cost me $321. a month!!! These drug companies should be ashamed of themselves.

 

More later.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

I will be interested to know if this will work for your fatigue as I struggle so much with that issue. You certainly do a great job of monitoring your meds to see their side effects and how they work for you. I am lucky to have a pharmacist for a daughter who watches out for me as I take so many that it gets pretty hard to keep track of. I hate to even think of adding any more to the mix but if this works then its worth it.

 

Warm hugs,

 

Peggy

Share this post


Link to post
Share on other sites

Hi Again!

 

Here's the update on Provigil for fatigue. IT WORKS! I was supposed to take 100 mg as soon as I wake up and then another 100mg around 2:00 pm. I am only taking the morning does. I have significantly more energy and am getting a lot more done. Around 2-3 I feel like I kind of crash though. I've been getting a headache and have a strange irritability feeling, and sometimes feel sick to my stomach. I need to talk to the doctor about that. Anyway. I'm staying on this one even though it's going to cost me $321. a month. I may not take it everyday either. He said I can take it when I felt I needed it, so that may be my ticket.

 

Anyway, for those of you that have severe fatigue, it may be worthwhile to speak with your doctors about it.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Sweet,

 

I don't take provilgil, but I take Dextroamephetamine 5mg twice a day for my interstitial cystitis (IC). It has also helped with my fibromyalgia pain and fatigue. I have been taking it about 10 months and it has worked great. My IC has done wonderful on it. I no longer have to go get weekly bladder instillation and I was able to get off a lot of my medications for IC. I don't take it after 3:00 to make sure it does not bother my sleeping. I am glad it is helping you.

 

Hugs,

Nina Lynn

Share this post


Link to post
Share on other sites

Sweet - I used Provigil for a long while and like you found it to be a wonderful drug until it wore off, but it's way better than the drop of many other drugs you could use. Like you I only took 1/2 tablet & used it mainly to get through work at the time. I stopped because my heart was showing diastolyic disfunction, but that had nothing to do with the drug, but the drug wasn't a good thing in the respect that it could have been putting more pressure on the heart to function. Just an FYI. Some days I do miss being able to use it :( I'm glad for you that you found something to help!


Soft hugs your way,

 

Michele

Share this post


Link to post
Share on other sites

Hi Pamela,

 

One of my sisters has fibromyalgia and takes lexapro now; it also covers her migraines and vertigo. She used to take nortriptyline but to many side effects. She says the Lexapro has helped alot and does feel a difference when she is not taking it. A friend of mine took provigil and it was a miracle drug for her and had to stop taking it due to a very high increase in her BP which went back to normal as soon as she stopped taking it. I've heard some wonderful things about it and not so wonderful.

 

There are not alot of drugs that are approved for fibromyalgia and I know my sister suffers terribly from it at times. She trully is quite affected and disabled by it at times.

 

I am sorry you have fibromyalgia and hope the provigil will come down in price. That is a terrible price to pay. Sometimes the brand name is cheaper, have you checked? Sometimes the drug companies have discounts. Have you looked up the company to see if maybe there is something you could wing from a different angle.

 

Good luck,

 

Judy


A happy heart is good medicine.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now