razz

Scleroderma and Exercise?

27 posts in this topic

Hi Razz,

 

I do several exercises and those have helped me tremendously. Normally, I start my day at 5AM with Yoga for about 45-60 minutes, breathing exercises for about 30 minutes, and end with meditation for 20 minutes.

 

During the day, either during lunch time and/or evening I walk at moderate pace for 2-3 miles.

 

My joint pains are way down, my weight is very stable in the range of 128-130 lbs, annd my diabetes is very well under control – normally morning glucose level under 80. I have been doing it for about a year and found to be extremely beneficial. I lovve my routine and can't stand a day without it.

 

Yes, still around once a month (like today), I get attack from Scleroderma making me very fatigued for a day or two.


Kind regards,

 

Kamlesh

 

 

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Angie,

 

I would like working out in a group setting like you mentioned if possible. No skinny women in tight spandex or muscular men prancing around. I hear any type of weight bearing exercise is good for strengthening bones which I could use. Thanks for sharing your exercise routine!

 

Annie N,

 

It's funny how you mentioned you never exercised before because that's how I was back in the day. Once you get started it's amazing how gradually one can build endurance. Keep up the good work. I'm starting to feel motivated now!

 

Clem,

 

Belly dancing or any kind of dancing would be perfect! I think all of us would make a great group of belly dancers! Good idea Clem!

 

 

Kamlesh,

 

You are doing fantastic! I am amazed at your schedule and dedication. The overall benefits you are getting are phenomenal. You are proof that despite having scleroderma, a good exercise routine can help tremendously in so many ways! Keep up the good work!

 

 

Hugs,

Razz


Live well, Laugh often, Love much

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Razz......my exercise routine prob won't work for you, but I'll tell you anyway. By the way, you're right.....it is amazing the way you feel once you start a routine and stick to it. It becomes a part of your day and it's sorely missed when you have to pass on it once in awhile. Anyway, I do weight training. Even with my rebuilt arm, I find that weights make me feel good and make me look good (at least that's what my wife tells me, but she could be pulling my leg). I also like to hike in our Utah mountains. I can't wait for winter cause then I get to snowshoe and ski. I have given up cycling for this year....got tired of being hit by cars. Maybe I'll do more next summer. My schedule for the weights depends on how I feel. Sometimes early in the morn, sometimes late afternoon.

 

I bought my wife (who also has SD) a set of 2lb and 3lb dumbells that are soft covered to protect her hands. We also have a weight machine system (from Sears) in our basement. It is safer to use than heavy free weights.

 

Keep in shape so you can write that next book.


~ You have to think anyway.....you might as well think big

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You all make me feel ashamed. :( I'm an exercise whiner. But, after reading all of your posts, I'm going to renew my membership at Replay Phy. Therapy and start atleast using the treadmill and exercise bike. Whine, whine, whine. <_<

 

Christy


Love makes the world go around!

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Yfchoice,

 

I've never been to Utah but I imagine the moutainous views are spectacular! That alone would get me out of the house and walking. You and your wife sound like a well-matched cute couple. (I like how you both met at a scleroderma conference.) There has to be a way to alert people with a warning attached to your bicycle that says "I'm on a bicycle, don't get near me!" You're right I do need to get in shape. I'm wiping the dust off my dumbells right now.

 

Christy,

 

You're not kidding about feeling ashamed! The most exercise I would get besides my 1/2 walks was a path from the sofa to the frig and back. :lol:

 

I like how everyone found some type of exercise that they can do on a regular basis.

 

Razz


Live well, Laugh often, Love much

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Hi razz,

 

Can't do a routine anymore with exercise but will use the pool in the summer. If that can't be done, will use my interactive computer game console. There are alot of different games that you need to interact with. Surprising it is quite exhausting sometimes. The kids like it too and it makes it fun.

 

Judy


A happy heart is good medicine.

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Judy,

 

I haven't tried the games console, but it sure looks like fun! I think this is a great game for kids (and parents) to play since they have so much energy. Swimming in the pool is one of my favorite pastimes.

 

 

Hugs,

Razz


Live well, Laugh often, Love much

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I haven't been able to integreate much needed flexibility and strengthening exercise into my post symptomatic scleroderma life, but prior to that I did a fair amount of yoga. In my experience, if you tell the teacher about your limitations, he/she will be able to recommend alternative poses and exercises that you'll be able to do as the class is in progress. They often suggest to the class alternatives for those with less flexibility or knee or back issues--so nothing to feel awkward about.

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delk,

 

Thank goodness there are exercise instructors who will recommend an alternate routine for people like us who aren't as flexible. Thank you for that great reminder. I'll keep that in mind next time I sign up for a class.

 

Hugs,

Razz


Live well, Laugh often, Love much

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I don't know if anyone is still reading this topic, but I go to gym which is part of an international chain of exercise facilities for women only. They use hydraulic machines so the amount of resistance is determined by how many repetitions you do. It's circuit training - you spend 30 seconds on a machine, then 30 seconds on a "recovery station." The recovery station is just a small platform. Some of the women barely move on them and some jog in place - whatever floats your boat is OK! Music is always playing so a lot of people dance. They don't allow portable music devices and encourage the development of friendships. There is a good mix of patrons -- young healthy women to 80 year old women with RA. I find everyone to be very supportive of each other. I go 3 times a week. The circuit takes about 30 minutes, and they encourage a stretching routine afterwards - it takes about 10 minutes. I LOVE IT!!! I tried gyms with the more traditional weight machines.. and couldn't do them. When I told my rheumatologist about this place, he was all for it. As a side note, I had moderate bone loss in my hips and mild bone loss in my spine. After pursuing this program for a year, my spine was better (not normal, but better) and my hips showed mild loss instead of moderate. The only thing that was different was starting the exercise. It is a science-based program and it works! Try googling "women's exercise programs" and you may be able to find a similar program in your area.

 

Soaring Eagle

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I am learning alot from reading all the posts here. I try to keep physically active . ON flare ups, of course things are restricted. But overall I walk, do alot of water aerobics, core exercises and small weights with limited exercises as not to aggravate the shoulders. I find exercise has been the number one deterent of pain and even when I don't want to , I try to do them and usually I am always happy I did. Sometimes though the legs won't walk and feet hurt too much. That is where water and pilates come in.

I love to strectch everyday for at least 15 minutes. It makes me feel so much better. Susie54

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Soaring Eagle,

 

It’s never too late to contribute to any of our topics. I like how your gym doesn’t allow portable music devices to encourage friendships and how it’s a science-based program. I am also glad to hear there’s been noticeable improvement in your bone mass. That’s encouraging for those of us who have experienced bone loss. Thanks for sharing your exercise experience!

 

 

Susie54,

 

I agree water aerobic is relaxing and not so hard on the joints. I prefer stretching for a few minutes in the morning. It stretches the muscles and gets the joints moving. Sometimes I don’t feel up to walking, but like you, I also feel better afterwards! Keep that great motivational spirit!

 

Hugs,

Razz


Live well, Laugh often, Love much

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