nan

Good Samaritan Hospital- Appt.

6 posts in this topic

Hi!,

The Scleroderma center at Hopkins wouldn't see me. My bloodwork is within normal limits and I have no skin manifestations. I do have Raynaud's, increased capillaries in the nail bed , watermelon stomach, GERD, and horrible time swallowing. I am going to see Dr. Saleh at the Good Samaritan Hospital. It is where the rheumatology department is for Johns Hopkins. I go next Wednesday at 1 p.m. They wanted me to come today. They got in touch yesterday. Hopefully, she will be able to figure some things out.

Nan

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Hi Nan,

 

Is that next Wednesday, as in next week, or tomorrow?

 

Hopefully you will have some answers then, although the diagnostic process can be very long and drawn out for people who don't have the good sense to develop all the classic symptoms in a timely manner, in the proper order and with the precise bloodwork. If your body would just read the textbook first, and follow it step by step, it would be an enormous help to your medical team. Lacking that, the best you can do is just hang in there.

 

From your symptoms, it sounds to me like you are in the right support forum, with others who will understand what it is like.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi Nan,

 

I also go to Good Semaritan Hosp to see Dr. Ratain (John Hopkins Rhuematology Dept). I have seen many, many Dr's in the past 11 years and so far she outshines everyone. The staff is great too! I wish you the best and if your Dr does not work out, please see Dr. Ratain. She is great!!!

 

Good luck...keep us posted!!

 

Sue

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