debz

An update from me....

21 posts in this topic

Hi Debz,

 

It's great to hear your good news from your endoscopy. Hoping with you that you will get another good rheumatologist. Your present one sounds wonderful and I'm hoping the rheumatologist he is refering you to will be too, in his/her own way.

 

Wishing you lots of positive thoughts.

 

Judy


A happy heart is good medicine.

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Hello Debz

I know exactly what you are going through, Iwas diagnosed with Limited Systemic

Scleroderma 4 years ago. I have the endoscopy every year, it is not that bad but I always get put to sleep for it. I havent been well for the last three months- had to have a full body scan- and am having hydrotherapy at the hospital pool- which

is wonderful for the hands and feet. Do you wear hand splints to bed? that helps

a lot also. When you get diagnosed you feel as if your the only person with this

disease- in fact I had never heard of it. I had heard of Lupus- which is supposed to be in the same family. Im only new to this forum- but I hope by speaking with others - I will not feel so alone.

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lou56, welcome to the ISN forums. I hope you meet many new people here that you can share your experiences with. Others will help you with questions that you may have regarding your illness'. Many of us find things that help us, so we are able to share things that may hopefully help others. Tell us a bit about yourself when you feel like sharing.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Hi Lou,

 

I haven't been diagnosed with scleroderma....it is one of the possibilities and has been 'mentioned'. Like you, I was asleep when they did the endoscopy :) which made things alot easier. I think the most anxious I felt was right before the procedure.

 

Thank you for your reply....this is really a wonderful place, with a wealth of information and support. I don't reply much to posts, but I do read and try to remember as much as I can! Hope that you can feel not so alone being here! It is hard when people don't understand the nature of these diseases and that is why being here is great, everyone understands the ups and the downs. Take care,

 

Hugs Deb

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Hello Debz. Glad to hear your good report. I hope it continues when you have your follow-up. Iwas recently diagnosed with Sjogrens and I don't know how it's affecting my saliva but it is doing a number on my eyes. I feel like I wake up with sand in them daily.

 

Lou,

 

Welcome to the forums. There's a lot of good information out here and some great folks.


I may have Scleroderma, but Scleroderma doesn't have me!

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Hi lou56,

 

I haven't had a chance to welcome you, but want to thank you for your helpful suggestions and let you know I'm glad you've joined our Family :rolleyes:

 

 

debz, I also want to let you know I'm glad you're with us...we try to help each other as much as we can and Sheryl, as well as others are great resources.

 

I'm sorry you'll be losing such a great doctor, but hopefully, he might be able to suggest/refer you to one who is as good as he.

 

In the meantime, I can appreciate your hubby's fear about the possiblity of Scleroderma.

 

However, the more empowered we are, in regard to being our own advocates and being a part of a great forum, the better we can cope with health issues that come up.

With the enormous group/family there is here, it's a sure thing someone can help as they've likely experienced what might be going on.

 

Take care and let us know how you're doing and your appointment goes.Hopefully, you have a good result and the rheumatologist is as great as your retiring doctor.

 

Hugs,

Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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