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smac0719

Mispronouncing or mispeaking your words

36 posts in this topic

Aside from the STM (short term memory) I find that my words don't come out right. For instance I was talking to a friend today and I meant to say one thing and the syllables were reversed. One of my sons had a friend over around lunch time and instead of my words coming out as "do you want to offer your friend some food" I said do you want to offer your friend some frood". Just now I meant to type "my words" but I typed "more words". I have never had this problem before and I am finding that it is occurring more frequently. I can know what I'm trying to say but it just doesn't come out right. This is really starting to bother me as I don't know if it's one of the meds, part of the disease or something new and separate altogether. I don't know if I can add another doctor to the list Anyone else having this issue? Boy, I have a list of things to discuss during my next doctor's visit.


I may have Scleroderma, but Scleroderma doesn't have me!

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Hi smac,

 

I don't even have Sclero and tonight I said to Gareth, "Come and get the milk out of the cupboard and pour the glasses!!!" I have no excuse for my mixed up words!!!

 

Take care, Everyone.

Margaret

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I am feeling so overwhelmed right now :( . Out of curiosity I did a search on the site for headaches as I've been having them more frequently as well. I found information on brain involvement with sclero and other autoimmune disorders. Is there any part of the body that this disease does not affect??? It also mentioned vertigo and I have suffered from it for years. I makes me wonder. I'm on overload so I'm going to bed. I'll definitely make an appt with my neuro tomorrow. Still curious to know what others are experiencing and any managing tips.


I may have Scleroderma, but Scleroderma doesn't have me!

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Oh yes, I have experience of this as has other sufferers I have spoken to. It's like my brain ha slowed down. I want to say something and it's like the words are not there and I really have to think about it. I don't know how many times I mix up use of the words tumble drier/washing machine/dishwasher/freezer. If my husband listened verbatum my dirty washing would be frozen, dirty dishes would be broken in the washing machine, frozen food would warming in the tumble drier and dried clothes would be dish washed.

 

When I was at work I spoke to Co directors, Judges, legal experts, irrate people and difficult staff and I never had a problem knowing exactly what to say and how to say it.

 

I know I am out of practice however I think the stress of having a chronic, unpredictable illness is the main cause. The brain always has one beady eye on the sclero and stresses about it.

 

I know that meds can wreak havoc also but for me I think it's just living with this disease.

 

Take care.

 

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Boy does this one sound familiar! I feel like one big malaprop! I forget what I wanted to say. Walk into the garage with a bag of trash and forget why I was there! Put the remote in the fridge! Start to do something and get distracted and do ten other things and never get around to the first thing at all. I used to be involved in trials and hearings - now I really have to concentrate to remember what I wanted to say at the end of a sentence! I call it "mental-pause" but I am not sure if it is menopause or the disease or the meds I am on for the disease. I have lost my cell phone, the remote, the portable phone in the house so many times I had to put a bounty on it sometimes to get the kids to help me find it! I have to take attendance before I walk out the door to make sure I have not forgotten to put something essential on. Fortunately I have only been leaving off my earrings and rings lately. I remember my underwear and clothing so far. I am worried about the day when I feel a draft as I leave!

 

This disease does do strange things, but we live very busy lives and on top of it all we try to multitask. That can make things even harder on our brains. We are juggling a lot to do and a lot to think about. I am not so sure that we are all that different than anyone else when it comes to memories. Everyone I know has those lapses. We are all very sensitive to it because we are all on meds. have a disease and are dealing with changes in our health from day to day There may well be some neurological changes in all of us from time to time. Our meds may make us tired or our reactions slower. But some of this stuff is just normal. If these changes are drastic or sudden then indeed we need to pursue them. If they are very upsetting see the doctor But also give yourself a break, we all have some trouble with words and memory sometimes.


Smurfette

 

Chocolate, It isn't just for breakfast anymore!

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Smurfette:

 

I love it, "mental pause" :lol: . A lot better sounding then "senior moment". I totally agree with you in that this is just a normal occurrence. I think we're just so preoccupied with so many things, it's just a minor overload for the minute. Actually I think it's quite funny. I got a glass of water from the fridge, put the bottle back and for no apparent reason went over to the microwave and set it for one minute :huh: ; go figure. I don't let these little things bother me. What irritates me is when I have a beverage in my hand and then go looking for something else, placing the glass down, it could take days before I find it again and always in the weirdest places!

 

To all, relax...it's normal.


Tru

 

It is what it is...........

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I'm really glad that these new gadgets we have have ways of finding themselves. I lost the phone but we have 3 of them so I was able to "locate" it. Boy it's good that I did as I would have never found it otherwise. Why it was where I found it I have no idea. My husband used to blame all of this on my "stupid pills" is what he called one of the meds I was taking. Now that I'm not taking that particular med any more he hasn't been saying it so I think that deep down he knows the "stupidity" that is arising has no other reason than another nasty side effect of this disease. Like I have said before with Alzheimers so very present in our family and then you add this sclero to the mix who knows where I'll be down the road. It's so very, very scary. I guess I'm destined to have lots of "mental pauses".

 

Warm hugs,

 

Peggy

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I can totally relate to this topic. It's hard to say if it's related to Sclero or not. I'm 49, so wonder if part of it is getting older - I don't sleep much, so maybe that's part of it. (That is what the doctors blame it on the most). Regardless it can be very frustrating!


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Mental pause...I like that one too! :lol: I also have trouble formulating my thoughts or sometimes I know what I want to say, but can't find the word to speak. I've also lost my train of thought in mid-sentence or have the situation where I go to do something, but once I get there I can't remember the task. I just turned 40 this summer so I would rather blame it on the disease than my age. ;)

 

I did call my neurologist and got an appointment for the 25th. I'm also going to take her a screen print of the page I found on the site about sclero and the brain just in case she's not familiar with neurological issues with sclero. I saw her back in '05 while in the midst of trying to get a diagnosis, but I don't remember what I was seeing her for specifically. I do remember her being puzzled as to what I had and she asked me to let her know once I found out. I remember her trying to do a nerve conduction test. My skin was so tight that she couldn't stimulate my nerves at all.

 

Thanks everyone!!


I may have Scleroderma, but Scleroderma doesn't have me!

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Totally relate. I always thought the word mix-up and difficulty finding words was menopause related, but sort of uncontrollable mixing up of syllables across word, like for instance when I'm reading my son a book and it comes out Do Gogs Do--I get freaked and think it's the disease, or something having to do with the facial skin tightening.

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I've had word mix-up for ages and it can be embarrassing I agree, because what I'm thinking is not what passes my lips. I think it can also be related to fibromyalgia (FM).


Sending good wishes your way!

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I do this all the time and also when I type I do it too.. Brain fog is now a actual thing caused by scleroderma. I too have this at times. So your not alone in this at all. Sam


Sam

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smac0719,

I can definitely relate to this subject. It's happens so much I've lost track. I will take a cup to the kitchen, stop in my bedroom to get something but can't remember what I was supposed to get. After leaving the room and going to my next task, I'll remember. This never happened pre-scleroderma. Sometimes in the middle of a conversation I can't think of the word I'm trying to use. If I'm talking to a friend or family member, it's okay. But if I'm talking to someone else, it's a little embarrassing. I used to be very organized, great with details and a multi-tasker. The forgetfulness and bad memory started after I developed scleroderma. I am sure medications, like cyclophosphamide and prednisone have made their contribution to this lovely mix.

I've realized that it's the more important things that get remembered. I usually laugh off the memory loss with the old saying that goes "Oh well it must have been a lie." I haven't done anything serious like leave the dog out all night, or ice cream in the car on a hot day blink.gif , so I guess it's not too bad!


Hugs,
Razz
smile.gif


Live well, Laugh often, Love much

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I too can really relate to this. One of boys asked me why the milk was in the cabinet? ;) I will go into a room to get something and by the time I get into that room, I would forgot what it is I was getting.

 

My words getting mixed started about two years ago. It got really bad at one point and I have three teen boys and they would notice. I was soo frustrated, I would just go into my room and cry.. I blamed it on the fibro. It did get a lot better, but if I get run down it acts up. I know when I need to rest.

 

Hope it gets better for you.

 

Nina Lynn

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Razz - I got so tickled with you saying "It must have been a lie". I used to hear that as a child. I was talking to a good friend and when I had a "mental pause" she said that. We both cracked up! :lol:

 

Ozzy - this happens almost daily for me and I don't feel necessarily feel run down when it happens (although I'll pay closer attention to see if there is any correlation). It has gotten the best of me at times because I have always been a quick thinker. I'll have a conversation with a frined and my whole side of the conversdation is a bunch of jumbled and tumbled words. I just usually start speaking slower or end the conversation altogether. I'll have to keep Tru's thoughts to "relax" my mind when it happens. I also tell myself and others "it is what it is" when talking about and dealing with the affects of this disease, but I haven't taken it to heart yet when it comes to this matter.


I may have Scleroderma, but Scleroderma doesn't have me!

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Razz, you must be lurking in my house and watching me. I have brain fog all of the time. But my wife doesn't. Must be payback for something I've done. I found that if I slow down a little and take a moment to think before I talk, I can sometimes come out of the fog.

 

Now if we could only get our politicians to quit misthinking AND quit misspeaking!!!!!


~ You have to think anyway.....you might as well think big

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The sclero brain fog has struck again! I've experienced this: unable to find the right word, losing train of thought mid sentence, jumbling up words or even syllables. More recently I've noticed my typing accuracy is deteriorating and I used to type dictation at 60 words per minute! Strange thing is, I recently noticed it is not so bad when I regularly take a prescription stimulant for the fatigue. It sharpens my concentration and reduces the "mental pauses" that regularly interrupt my day. So maybe it is related to fatigue and being mentally tired? Anyway, hope it helps to know you're not the only one at a loss for words. ;)

 

Heather

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Oh my, yes! Mix the words up, forget the words, remember them in my second language but not the first, mispronounce things. It's incredibly frustrating. I can tell by watching my husband's face that I'm gibbering a bit -- he does this really slow blink thing.

 

This sort of thing used to be called dysphasia which meant an impairment of speech (not the same as a speech defect) and/or understanding speech. I've never read anything about it being connected to scleroderma, has anyone else? I mean apart from brain fog.

 

I used to read aloud to my kids all the time and I'm wondering if I started reading stories aloud and recording for my grandson would help. At the very least it would give me a great excuse for re-reading some of our favorite children's books! :)

 

Warm huts, um, hugs,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Oh, Jeannie, I love what you said your husband does, "the slow blink thing." That just cracks me up!

 

I was 39 when my general practitioner started blaming my problems on possible early menopause! I knew he was wrong.

 

I drive my daughter crazy with my problems! I have to watch and re-watch segments of movies, right after they happen! She now takes away the remote. I have to read and re-read parts of books until the words finally soak in! I have really tough problems with new recipes, too, constantly leaving out key ingredients (the lemon in a lemon meringue pie or the yeast in a yeast bread), going back over and over looking at the recipe, thinking, "was that Tablespoon or Teaspoon," looking again, then going back to my cooking and thinking, "Now what was that again, Tablespoon or Teaspoon." The spelling thing really gets to me, starting each word with the second letter, then having to backtrack to insert the first letter. I try to talk as little as possible, because sometimes the confused looks on people's faces say to me, "Wow, is she drunk?" Hahaha! I don't even drink!

 

I used to be VERY worried about all of these things, but have since calmed down as they seem to be very "normal" with these diseases!

 

((Many, many hugs!!))

 

Janet

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You know what?!! I'm pretty sure that if we were all together we would know exactly what is being said and not think anything about it :lol: !!!

 

A lot of you know how my fingers tend to get "tangled up" when I type?! Well, my tongue does the same thing when I talk :P !!!

 

For those who have never experienced this, I liken it to when eating ice cream or chewing on ice and your tongue gets cold? Same effect!

 

Why does this happen? I can only surmise that like the rest of you, it could be the meds, lack of rest, the Scleroderma.

 

I know this much, I don't dwell on it as much as I did in the beginning :D !


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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:wacko: To All these comments I can say "me too". Been there done that. My biggest frustration is loosing things. I have something in my hands and 30 seconds later I have no idea where it is. A few things, like car keys, I have made myself a rule to never let go of except it is in a specific place. That helps some.

I guess misery loves company as I have enjoyed reading these posts.

Betty

:closedeyes:

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I often forget what I am saying in the middle of saying it, wander rooms in search of what I had wandered in there for and found myself sitting in the bedroom holding something like a screwdriver and thinking to myself , "Why am I holding a screwdriver"?

 

That and what I call 'word locking', where you know what word you want to use, you could spell it., you could draw it, why you could give an interpretive dance symbolizing it but for the life of you, you can't say it! I will end up stuttering at times trying to force that word out (just how hard can it be to say "door-knob??) and will end up just pointing and grunting, then getting mad and just saying "you know exactly what I mean, the thingy with the thing!"

 

I think it is just the native language of Sclerodermia, we understand us perfectly! :lol:

 

Penny

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I do the same things and I can't blame it on old age because I won't even be 40 for a few more months. I never gave it any thought it was sclero related. I also have a TBI and ABI injuries from repeated concussions and near drowning as a child so I just blame all my goofiness on that. :lol:

 

I constantly forget things especially with cooking. Like last night I completely forgot to put fries in the oven so I had only a hamburger. I often forget to turn the oven on and waste 30 minutes waiting for the food to cook when the oven isn't turned on. Last weekend I decided to make pancakes from scratch and decided I knew everything by memory so I didn't need to follow the recipe. I ended up putting things in the wrong order so the batter turned out like glue. I do stupid things like hide stuff from myself, have found the toilet paper in the fridge. Once I was convinced I had actually tossed my wallet away in the garbage so I dug around in the dumpster looking for it finally gave up came inside and eventually found my wallet in a bag of laundry and why I put it there I couldn't remember. :huh:

 

My first thought would be to blame it on medication but we all aren't taking the same meds. Like many have mentioned taking things like steriods or cellcept but I don't take those on a regular basis, so what's my excuse? Maybe its lack of sleep because I don't sleep well now for years. But then again I have the brain injury which I blame everything on. Like I was dizzy yesterday at PT and the therapist wanted to know why. I said oh I have these spells throughout my life, its probably just the brain injury. I've been run through a battery of tests twice for the dizziness and they never come up with an answer.

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Oh and I forgot to even mention the mispronouncing part. I notice when I reread my emails I often type in the wrong word, sometimes things that rhyme with what I meant to say. Recently I made mom angry telling her "I'm coming to visit in March" she says I said but I swear I said "April" which is what I meant. So we got into an argument over that one. Its bad when family starts noticing I am getting weird. <_<

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TOTALLY! And I don't think it's a memory thing; it feels more like my lips don't do what I'm telling them to do. I too read Do Gogs Do to my son. I'm thinking it's the skin tightening, like when I can't close my mouth to chew or drink and food spills out. (yuck)

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