smac0719

Mispronouncing or mispeaking your words

36 posts in this topic

Aside from the STM (short term memory) I find that my words don't come out right. For instance I was talking to a friend today and I meant to say one thing and the syllables were reversed. One of my sons had a friend over around lunch time and instead of my words coming out as "do you want to offer your friend some food" I said do you want to offer your friend some frood". Just now I meant to type "my words" but I typed "more words". I have never had this problem before and I am finding that it is occurring more frequently. I can know what I'm trying to say but it just doesn't come out right. This is really starting to bother me as I don't know if it's one of the meds, part of the disease or something new and separate altogether. I don't know if I can add another doctor to the list Anyone else having this issue? Boy, I have a list of things to discuss during my next doctor's visit.


I may have Scleroderma, but Scleroderma doesn't have me!

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Hi smac,

 

I don't even have Sclero and tonight I said to Gareth, "Come and get the milk out of the cupboard and pour the glasses!!!" I have no excuse for my mixed up words!!!

 

Take care, Everyone.

Margaret

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I am feeling so overwhelmed right now :( . Out of curiosity I did a search on the site for headaches as I've been having them more frequently as well. I found information on brain involvement with sclero and other autoimmune disorders. Is there any part of the body that this disease does not affect??? It also mentioned vertigo and I have suffered from it for years. I makes me wonder. I'm on overload so I'm going to bed. I'll definitely make an appt with my neuro tomorrow. Still curious to know what others are experiencing and any managing tips.


I may have Scleroderma, but Scleroderma doesn't have me!

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Oh yes, I have experience of this as has other sufferers I have spoken to. It's like my brain ha slowed down. I want to say something and it's like the words are not there and I really have to think about it. I don't know how many times I mix up use of the words tumble drier/washing machine/dishwasher/freezer. If my husband listened verbatum my dirty washing would be frozen, dirty dishes would be broken in the washing machine, frozen food would warming in the tumble drier and dried clothes would be dish washed.

 

When I was at work I spoke to Co directors, Judges, legal experts, irrate people and difficult staff and I never had a problem knowing exactly what to say and how to say it.

 

I know I am out of practice however I think the stress of having a chronic, unpredictable illness is the main cause. The brain always has one beady eye on the sclero and stresses about it.

 

I know that meds can wreak havoc also but for me I think it's just living with this disease.

 

Take care.

 

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Boy does this one sound familiar! I feel like one big malaprop! I forget what I wanted to say. Walk into the garage with a bag of trash and forget why I was there! Put the remote in the fridge! Start to do something and get distracted and do ten other things and never get around to the first thing at all. I used to be involved in trials and hearings - now I really have to concentrate to remember what I wanted to say at the end of a sentence! I call it "mental-pause" but I am not sure if it is menopause or the disease or the meds I am on for the disease. I have lost my cell phone, the remote, the portable phone in the house so many times I had to put a bounty on it sometimes to get the kids to help me find it! I have to take attendance before I walk out the door to make sure I have not forgotten to put something essential on. Fortunately I have only been leaving off my earrings and rings lately. I remember my underwear and clothing so far. I am worried about the day when I feel a draft as I leave!

 

This disease does do strange things, but we live very busy lives and on top of it all we try to multitask. That can make things even harder on our brains. We are juggling a lot to do and a lot to think about. I am not so sure that we are all that different than anyone else when it comes to memories. Everyone I know has those lapses. We are all very sensitive to it because we are all on meds. have a disease and are dealing with changes in our health from day to day There may well be some neurological changes in all of us from time to time. Our meds may make us tired or our reactions slower. But some of this stuff is just normal. If these changes are drastic or sudden then indeed we need to pursue them. If they are very upsetting see the doctor But also give yourself a break, we all have some trouble with words and memory sometimes.


Smurfette

 

Chocolate, It isn't just for breakfast anymore!

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Smurfette:

 

I love it, "mental pause" :lol: . A lot better sounding then "senior moment". I totally agree with you in that this is just a normal occurrence. I think we're just so preoccupied with so many things, it's just a minor overload for the minute. Actually I think it's quite funny. I got a glass of water from the fridge, put the bottle back and for no apparent reason went over to the microwave and set it for one minute :huh: ; go figure. I don't let these little things bother me. What irritates me is when I have a beverage in my hand and then go looking for something else, placing the glass down, it could take days before I find it again and always in the weirdest places!

 

To all, relax...it's normal.


Tru

 

It is what it is...........

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I'm really glad that these new gadgets we have have ways of finding themselves. I lost the phone but we have 3 of them so I was able to "locate" it. Boy it's good that I did as I would have never found it otherwise. Why it was where I found it I have no idea. My husband used to blame all of this on my "stupid pills" is what he called one of the meds I was taking. Now that I'm not taking that particular med any more he hasn't been saying it so I think that deep down he knows the "stupidity" that is arising has no other reason than another nasty side effect of this disease. Like I have said before with Alzheimers so very present in our family and then you add this sclero to the mix who knows where I'll be down the road. It's so very, very scary. I guess I'm destined to have lots of "mental pauses".

 

Warm hugs,

 

Peggy

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I can totally relate to this topic. It's hard to say if it's related to Sclero or not. I'm 49, so wonder if part of it is getting older - I don't sleep much, so maybe that's part of it. (That is what the doctors blame it on the most). Regardless it can be very frustrating!


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Mental pause...I like that one too! :lol: I also have trouble formulating my thoughts or sometimes I know what I want to say, but can't find the word to speak. I've also lost my train of thought in mid-sentence or have the situation where I go to do something, but once I get there I can't remember the task. I just turned 40 this summer so I would rather blame it on the disease than my age. ;)

 

I did call my neurologist and got an appointment for the 25th. I'm also going to take her a screen print of the page I found on the site about sclero and the brain just in case she's not familiar with neurological issues with sclero. I saw her back in '05 while in the midst of trying to get a diagnosis, but I don't remember what I was seeing her for specifically. I do remember her being puzzled as to what I had and she asked me to let her know once I found out. I remember her trying to do a nerve conduction test. My skin was so tight that she couldn't stimulate my nerves at all.

 

Thanks everyone!!


I may have Scleroderma, but Scleroderma doesn't have me!

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Totally relate. I always thought the word mix-up and difficulty finding words was menopause related, but sort of uncontrollable mixing up of syllables across word, like for instance when I'm reading my son a book and it comes out Do Gogs Do--I get freaked and think it's the disease, or something having to do with the facial skin tightening.

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I've had word mix-up for ages and it can be embarrassing I agree, because what I'm thinking is not what passes my lips. I think it can also be related to fibromyalgia (FM).


Sending good wishes your way!

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I do this all the time and also when I type I do it too.. Brain fog is now a actual thing caused by scleroderma. I too have this at times. So your not alone in this at all. Sam


Sam

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smac0719,

I can definitely relate to this subject. It's happens so much I've lost track. I will take a cup to the kitchen, stop in my bedroom to get something but can't remember what I was supposed to get. After leaving the room and going to my next task, I'll remember. This never happened pre-scleroderma. Sometimes in the middle of a conversation I can't think of the word I'm trying to use. If I'm talking to a friend or family member, it's okay. But if I'm talking to someone else, it's a little embarrassing. I used to be very organized, great with details and a multi-tasker. The forgetfulness and bad memory started after I developed scleroderma. I am sure medications, like cyclophosphamide and prednisone have made their contribution to this lovely mix.

I've realized that it's the more important things that get remembered. I usually laugh off the memory loss with the old saying that goes "Oh well it must have been a lie." I haven't done anything serious like leave the dog out all night, or ice cream in the car on a hot day blink.gif , so I guess it's not too bad!


Hugs,
Razz
smile.gif


Live well, Laugh often, Love much

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I too can really relate to this. One of boys asked me why the milk was in the cabinet? ;) I will go into a room to get something and by the time I get into that room, I would forgot what it is I was getting.

 

My words getting mixed started about two years ago. It got really bad at one point and I have three teen boys and they would notice. I was soo frustrated, I would just go into my room and cry.. I blamed it on the fibro. It did get a lot better, but if I get run down it acts up. I know when I need to rest.

 

Hope it gets better for you.

 

Nina Lynn

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Razz - I got so tickled with you saying "It must have been a lie". I used to hear that as a child. I was talking to a good friend and when I had a "mental pause" she said that. We both cracked up! :lol:

 

Ozzy - this happens almost daily for me and I don't feel necessarily feel run down when it happens (although I'll pay closer attention to see if there is any correlation). It has gotten the best of me at times because I have always been a quick thinker. I'll have a conversation with a frined and my whole side of the conversdation is a bunch of jumbled and tumbled words. I just usually start speaking slower or end the conversation altogether. I'll have to keep Tru's thoughts to "relax" my mind when it happens. I also tell myself and others "it is what it is" when talking about and dealing with the affects of this disease, but I haven't taken it to heart yet when it comes to this matter.


I may have Scleroderma, but Scleroderma doesn't have me!

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