smac0719

Mispronouncing or mispeaking your words

36 posts in this topic

Razz, you must be lurking in my house and watching me. I have brain fog all of the time. But my wife doesn't. Must be payback for something I've done. I found that if I slow down a little and take a moment to think before I talk, I can sometimes come out of the fog.

 

Now if we could only get our politicians to quit misthinking AND quit misspeaking!!!!!


~ You have to think anyway.....you might as well think big

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The sclero brain fog has struck again! I've experienced this: unable to find the right word, losing train of thought mid sentence, jumbling up words or even syllables. More recently I've noticed my typing accuracy is deteriorating and I used to type dictation at 60 words per minute! Strange thing is, I recently noticed it is not so bad when I regularly take a prescription stimulant for the fatigue. It sharpens my concentration and reduces the "mental pauses" that regularly interrupt my day. So maybe it is related to fatigue and being mentally tired? Anyway, hope it helps to know you're not the only one at a loss for words. ;)

 

Heather

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Oh my, yes! Mix the words up, forget the words, remember them in my second language but not the first, mispronounce things. It's incredibly frustrating. I can tell by watching my husband's face that I'm gibbering a bit -- he does this really slow blink thing.

 

This sort of thing used to be called dysphasia which meant an impairment of speech (not the same as a speech defect) and/or understanding speech. I've never read anything about it being connected to scleroderma, has anyone else? I mean apart from brain fog.

 

I used to read aloud to my kids all the time and I'm wondering if I started reading stories aloud and recording for my grandson would help. At the very least it would give me a great excuse for re-reading some of our favorite children's books! :)

 

Warm huts, um, hugs,


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Oh, Jeannie, I love what you said your husband does, "the slow blink thing." That just cracks me up!

 

I was 39 when my general practitioner started blaming my problems on possible early menopause! I knew he was wrong.

 

I drive my daughter crazy with my problems! I have to watch and re-watch segments of movies, right after they happen! She now takes away the remote. I have to read and re-read parts of books until the words finally soak in! I have really tough problems with new recipes, too, constantly leaving out key ingredients (the lemon in a lemon meringue pie or the yeast in a yeast bread), going back over and over looking at the recipe, thinking, "was that Tablespoon or Teaspoon," looking again, then going back to my cooking and thinking, "Now what was that again, Tablespoon or Teaspoon." The spelling thing really gets to me, starting each word with the second letter, then having to backtrack to insert the first letter. I try to talk as little as possible, because sometimes the confused looks on people's faces say to me, "Wow, is she drunk?" Hahaha! I don't even drink!

 

I used to be VERY worried about all of these things, but have since calmed down as they seem to be very "normal" with these diseases!

 

((Many, many hugs!!))

 

Janet

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You know what?!! I'm pretty sure that if we were all together we would know exactly what is being said and not think anything about it :lol: !!!

 

A lot of you know how my fingers tend to get "tangled up" when I type?! Well, my tongue does the same thing when I talk :P !!!

 

For those who have never experienced this, I liken it to when eating ice cream or chewing on ice and your tongue gets cold? Same effect!

 

Why does this happen? I can only surmise that like the rest of you, it could be the meds, lack of rest, the Scleroderma.

 

I know this much, I don't dwell on it as much as I did in the beginning :D !


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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:wacko: To All these comments I can say "me too". Been there done that. My biggest frustration is loosing things. I have something in my hands and 30 seconds later I have no idea where it is. A few things, like car keys, I have made myself a rule to never let go of except it is in a specific place. That helps some.

I guess misery loves company as I have enjoyed reading these posts.

Betty

:closedeyes:

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I often forget what I am saying in the middle of saying it, wander rooms in search of what I had wandered in there for and found myself sitting in the bedroom holding something like a screwdriver and thinking to myself , "Why am I holding a screwdriver"?

 

That and what I call 'word locking', where you know what word you want to use, you could spell it., you could draw it, why you could give an interpretive dance symbolizing it but for the life of you, you can't say it! I will end up stuttering at times trying to force that word out (just how hard can it be to say "door-knob??) and will end up just pointing and grunting, then getting mad and just saying "you know exactly what I mean, the thingy with the thing!"

 

I think it is just the native language of Sclerodermia, we understand us perfectly! :lol:

 

Penny

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I do the same things and I can't blame it on old age because I won't even be 40 for a few more months. I never gave it any thought it was sclero related. I also have a TBI and ABI injuries from repeated concussions and near drowning as a child so I just blame all my goofiness on that. :lol:

 

I constantly forget things especially with cooking. Like last night I completely forgot to put fries in the oven so I had only a hamburger. I often forget to turn the oven on and waste 30 minutes waiting for the food to cook when the oven isn't turned on. Last weekend I decided to make pancakes from scratch and decided I knew everything by memory so I didn't need to follow the recipe. I ended up putting things in the wrong order so the batter turned out like glue. I do stupid things like hide stuff from myself, have found the toilet paper in the fridge. Once I was convinced I had actually tossed my wallet away in the garbage so I dug around in the dumpster looking for it finally gave up came inside and eventually found my wallet in a bag of laundry and why I put it there I couldn't remember. :huh:

 

My first thought would be to blame it on medication but we all aren't taking the same meds. Like many have mentioned taking things like steriods or cellcept but I don't take those on a regular basis, so what's my excuse? Maybe its lack of sleep because I don't sleep well now for years. But then again I have the brain injury which I blame everything on. Like I was dizzy yesterday at PT and the therapist wanted to know why. I said oh I have these spells throughout my life, its probably just the brain injury. I've been run through a battery of tests twice for the dizziness and they never come up with an answer.

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Oh and I forgot to even mention the mispronouncing part. I notice when I reread my emails I often type in the wrong word, sometimes things that rhyme with what I meant to say. Recently I made mom angry telling her "I'm coming to visit in March" she says I said but I swear I said "April" which is what I meant. So we got into an argument over that one. Its bad when family starts noticing I am getting weird. <_<

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TOTALLY! And I don't think it's a memory thing; it feels more like my lips don't do what I'm telling them to do. I too read Do Gogs Do to my son. I'm thinking it's the skin tightening, like when I can't close my mouth to chew or drink and food spills out. (yuck)

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TOTALLY! And I don't think it's a memory thing; it feels more like my lips don't do what I'm telling them to do. I too read Do Gogs Do to my son. I'm thinking it's the skin tightening, like when I can't close my mouth to chew or drink and food spills out. (yuch)

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I talked to a new neuropsych today about getting reevaluated for my cognitive difficulties. We talked about everything under the sun mind you since he was kind enough to talk 1.5 hrs to me over the phone. He told me the thing with saying the wrong word is a sign of brain damage. For me I've had so many concussions they know I have TBI. But for others you might want to research if Sclero does damage the brain or it may even be the medications. Or maybe you boinked your head in the past too many times like I did. I do know from another neuropsych she said that certain infections, fibromyalgia and certain medications can cause brain damage so its not all physical injury that can cause it. Course if its meds or fibro causing it then it would be an ABI (acquired brain injury) not a TBI. It helps to use the right term when researching as ABI's affect different regions specifically.

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Yeah I totally know where you're coming from. I do exactly the same and can't pronounce words at times even though I'm told how to say them. It doesn't roll off my tongue as the same sounds. haha! I also forget where I'm going and where I am at times, then other times I'm ok. I haven't experienced anything like this before I was diagnosed so I just put it down to scleroderma. When it happens it can happen for days or weeks then just stops and then I'm normal again. :rolleyes: Well, I try to be. hahaha

 

Hugs fom jaxsx!


live life for today and not for tomorrow

 

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Hi,

 

I was reading through all these entries, and it is me in all of them too. I even mentioned to the doctor about 5 years ago that my mouth doesn't form the words correctly. She sent me to a neurologist who couldn't find anything wrong.

 

My students told me that I sound funny last semester. I find that I now have a slightly funny accent that doesn't have anything to do with where I've lived. My top lip doesn't move like it should when I'm talking and it causes some sounds to come out wrong.

 

I've had what I call "Spooner-isms" for so long that saying things mixed up is normal for me. Things like "Yew Nork" for New York, mixing up the first letter of words is a common mistake which became "Spooner-isms" because of a man named Spooner who did it all the time. I have noticed that I am saying the wrong words rather than just mixing them up at times, but that doesn't worry me as much as not being able to form the words correctly. I can't tell you how many times I call the cat my daughter's name or the other way around.

 

I was visiting with a person here that also is dealing with sclero in the form of morphea. She was talking just like me, her top lip wasn't moving right when she said things. I even told her that she sounds just like me. I was at the GI doctor and he noticed the top lip seemed frozen and remarked that I was talking "funny". Still, no one has actually come out and said that this is scleroderma, or that that is a symptom of scleroderma.

 

Mando

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Mando,

 

I have another "Spooner-ism" for you... 'toin coss', it is supposed to be 'coin toss' but never comes out right for me.

 

My Mother (who has SLE) has her own as well... she keeps hanging poor Murial on the wall and now she will be painting a huge Murial in the basement on the wall when they redecorate there later this spring. We have tried to tell her it is 'mural' but she just can't say that word.

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