• Announcements

    • Joelf

      Upgraded Sclero Forums!   05/18/2017

      Welcome to the Upgraded and Redesigned Sclero Forums!!   Our Forums are even better and more up to date than before.   Happy Posting to all our Members!!
summer

Advice please with diet

10 posts in this topic

I went to see local doctor on Friday, all of the blood tests are normal, so we are back to square one. My doctor thought if it was Gastroparesis my blood tests would not show it. I am due to see Gastro doctor on Wednesday coming.

 

For the last 3 days I have been on a Gastroparesis diet which I got off the internet, 6 small crackers for breakfast, lunch and dinner with plenty of fluids.

This diet is not recommended after 3 days obviously as the lack of nutrients.

I am on day 3, fed up with crackers but knowing if I eat anything else It might lead me to the toilet again. Today I feel as though I may be a little constipated.

 

Does anyone have any suggestions at least until wednesday, with what I could be eating, maybe, any people who have Gastroparesis would be great.

 

Thanks

Celia :(

Share this post


Link to post
Share on other sites

Celia, I feel bad for what you are having to go through for this long a peroid of time. Everyone is different and our systems react differently. I have been told to eat Pinto beans, bean dishes and high fiber cereals when I am having initial problems. I take medications daily now that keep my body in balance. What has been prescribed for me is Colestid tablets. Three tablets twice daily. These pills help my body to absorb nutrients from food that I have eaten. I don't know what else they are susppose to do, but my bowels ate staying pretty healthy the past couple years. Everything usually stays in decent working order. For serious infections I usually am prescribed Flagyl or Xifaxan. Since you are waiting to get your breath test you may not be able to start these antibotics. They might not even work the same for you as they do for me. You could at least read up on these things and see which you would rather start with. Sometimes I need to be on the antibotic for a full month to get my system cleared of infection. I do take probiotic acidophlus to help with the good bacteria/flora in my system. You would think the doctors would go ahead and prescribe something to take away the problem so you aren't suffering, and worry about the overgrowth breath test another time. Those of us with Scleroderma can have bowel problems you would think by now that the doctors would have a routine therapy program for those with diarrhea or constipation problems. Amazing how long we have to suffer to get things rectified. I feel for you, as I do know what you are going through. Bowel problems have been one of the worst things that I have had to deal with. Keep us informed with anything that helps you out. It may help others going through the same things. I wish you well.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

BRAT diet, bananas, rice, applesauce, and toast, is popular among parents when their kids have diarrhea. Tou might try this.

Hope it helps!

Becky


Diagnosed with Diffuse Systemic Scleroderma May 2005

Raynaud's, GI, esophagus, skin and lung involvement.

Share this post


Link to post
Share on other sites

Hello Ced,

 

I am sorry you are having such a hard time of it. I don't have the same issue as you nor the degree of severity but I do now have bowel involvement and as Sheryl said, it can be so unpleasant. The day I realised I had been initiated into the painful world of bowel problems I put my head on the sink next to the toilet and promptly burst into tears.

 

I have never heard of the BRAT diet but have heard of including rice, the idea is that it helps to absord the bad stuff and carry it out of the body. When my beloved puss cats were kittens they had "delicate" digestive systems and the vet opted for a natural approach, cooked rice in their food to absorb the bad stuff and take it out of the body. Well all I know is that the rice came out their bodies continuously whilst they walked around the house so they ended up confined to quarters.

 

I do hope your doctor(s) give you some relief long term from this truely unpleasant problem and no doubt someone more helpful than I will chip in with sound advice. You do have my sympathy though.

 

Take care.

 

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Thanks everyone for replying to my post.

 

Sheryl, I have read to steer away from anything wholegrain and wholemeal, vegies with skins and also fruit with skins. Apparently anything that contains fibre stays in your system longer making it hard to digest.

 

This has been one of my worst weeks ever, on top of all of this diarhea and nearly vomiting I had a severe migraine and the worst period pain ever. I truly have felt that I have been cursed. I haven't opened my bowels for 3 days now, I am just dreading tomorrow morning.

 

Thanks for listening everyone, you are a great bunch of people

 

Take care

Celia :unsure:

Share this post


Link to post
Share on other sites

Hi Celia,

 

Boy do I empathize. I have celiac disease and no colon due to past ulcerative colitis. My diet advice is to eat tiny amounts at a time. I also have slow to empty stomach, I don't go to the bathroom for maybe six hours and then I go every 15 minutes for two hours straight. I haven't slept more than two hours in years.

 

For breakfast a small bowl of watery oatmeal. Lunch, a little bit of chicken salad, maybe a small bowl of soup, some rice and beans, again a very small amount like less than a cup at a time.

 

Dinner, whatever meat I make for the family, but maybe four bites and a tiny amount of rice or mashed potatoes. A small serving of very well cooked veggies.

 

LOTS and LOTS of water. Drink sips all day long. Food has become my ememy and so I eat only to survive. I'm so sorry you are unwell, this is a huge problem, but you can learn to live with it. Best of luck. Write me any time!

 

Karen

Share this post


Link to post
Share on other sites

Celia,

 

I just thought of something else...there's something we scleroderma people get, called pseudo-obstruction. You can find it in the archives here, or just google.

 

If you still haven't gone to the bathroom after four days! And you are distended (your belly looks pregnant) and you have "labor like" pains, you'd better go to the ER.

 

I had that a few weeks ago and I had never heard of it. Neither had the hospital. Thank god, my rheumatologist is THE authority and he told me what it probably was. At the ER they gave me pain medication and it relaxed me enough to open the bowel again. I was SORE for a week or so. Look into it and don't let this get any worse without professional help. It can be very dangerous.

 

Peace,

 

Karen

Share this post


Link to post
Share on other sites

Hi Celia, I can also empathise/sympathsie with your problem, but unfortunately don't have any solutions to offer. I have a slow emptying stomach and alternate between not going to the loo for days on end to having diarrhoea and going 6- 8 times an with both I often look 8 months pregnant and am not able to fit into clothes. Also get frequent nausea/regurgitation. I have tried cutting out wheat products and gas producing vegtables such as brocoli and cabbage but has made no difference. I have been prescribed Movicol which helps when in the 'not going' phase but haven't found anything that stops the bouts of diarrhoea. I resort to immodium on days when it is not possible to be constantly running to the loo, but it is probably not a good thing to do. I've requested to see the gastro doctor again as is really interfereing with life.

 

Lizzie

Share this post


Link to post
Share on other sites

Hi Celia

 

Sorry I can't offer any suggestions to help but I do feel for you! I also hope you get some help really soon with this!


Sending good wishes your way!

Share this post


Link to post
Share on other sites

Celia,

The only thing I want to add, besides the BRAT diet is to make sure you are maintaining your electrolytes. You need more than water if you are going and going and going........ We fed our babies Pedialyte when they were babies and had the runs a lot. There are other things on the market for adults to replace things you need. Be careful to make sure that you hare not just replacing water and losing other important minerals and other things.

 

Good luck and feel better.


Smurfette

 

Chocolate, It isn't just for breakfast anymore!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now