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Sore bones anyone?

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Has anyone else have sore bones?, lately I have noticed that all of my bones arre sore to touch. The main area inflicted is the lower back going all the way up my spine, I also have stiffness in the lower back. For the last 4 months I have noticed I am in terrible pain all around the sides of the spine going towards the side of my body.


I am due to see my rheumatologist in a few days time and have had a back xray, my recent bloodwork has been normal.


Many thanks


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Yes, I have this 24/7/365. I hate it. I go to the chiropractor weekly, usually the acupuncturist weekly and get massages. I'm in pain all the time. The rheumatologist states none of it is due to sclero....not sure I agree.


I hope you can find some relief, it can make a person miserable!!!

Warm and gentle hugs,



ISN Support Specialist

International Scleroderma Network (ISN)

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Hi ced,


Good to hear from you and sorry you are having difficulty. My lower back pain is generally from strain and I believe that is different from what you are experiencing. Vacumming, sweeping or washing the floors and mowing the lawn is excruciatingly painful but it does go away after few hours. Sometimes acetaminophen takes the edge off if I remember to take it before hand. It would be nice not to have to do these things and was thinking maybe other people still do these things too.


Take care and hope you feel better soon.



A happy heart is good medicine.

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Hi Ced


I have a lot of joint pain, mainly in my lower back, hips & knees along with that I do get the 'bone' pain which is in my shins, this is like a kind of constant nagging ache which doesn't go away even with painkillers. I have had some x-rays done of my back and that just showed too much degeneration of my upper & lower spine for my age, as the rheumatologist put it. My rheumatologist said that most of my pain in joints etc is due to the Raynaud's. All I know I do have the pain & at times I find it very hard to cope with.




Take Care


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