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maria78

I have found a great doctor

5 posts in this topic

Hi,

 

I went to doctor in beginning of this month. Finally I saw a doctor how knows what sclero is and also he has seen other patients too.

 

He told me that my skin is getting tighter and I also have atrophy in my legs and fingers. (I have know that, but this was first time that doctor told me that.)

 

I´m just wondering why it feels like new information, even when I have known that that's the case?

 

He gave me Adalat for Raynaud's, the dose is 60mg once a day. I don't think I can handle that much, since I have low blood pressure, and I'm sure that I'm going to black out.

 

In a few weeks I go to rehabilitation for three weeks, and there I will get more information about my future.

 

Now I'm working part time, but sometimes I think that I can´t go to work and sit all day, because of the pain.

 

I'd like to ask if anybody has skin changes in their fingers and do you think that I can do computer work after my fingers get tighter?

 

Greetings,

Maria

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Hi Maria,

It sounds like you have found a great doctor and are happy with them. It is very difficult to find a dr that knows about sclero! I do have tightening on my fingers and I also get ulcers. I have one right now that I have had since June. I do some computer work but I could never do it all day for a job. Maybe when you go to therapy they can help you with some exercizes to stretch out you fingers for more mobility.

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

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International Scleroderma Network (ISN)

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Maria, I really think it depends on how your hands are to make that decison, but doing exercises like Lisa mention will be a big help.


Sam

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Hello Maria

 

Glad you have a good doctor and plans afoot for future treatment.

 

My hands are in a poor way (ahhhhh) I have contractures on every finger because of which they are bent over at the middle joint and I have tight skin which is why my wrists don't move.

 

When at work I used a computer all day and I could not do that now. What you will be able to do/not do remains to be seen.

 

Lisa and Sam are absolutely right, exercise the hands now using a recommended routine. A lot of people find that by the time they get treatment the damage to the hands is already done.

 

Take care.

 

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

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Maria,

 

I am glad to hear you have found a dr who has some experience with this disease. I hope this is the beginning of a great relationship and good medical help for you. Best wishes with your therapy and if you think the Adalat will decrease your blood pressure too low discuss that with your dr. When I was put on Norvasc for my Raynauds I had the same concern. Discussing the dose with my dr helped to ease my mind and the dosage prescribed only dropped it a few points as he said. I also have a blood pressure machine that I use at home. I checked it pretty regularly for the first few weeks on the medicine.


I may have Scleroderma, but Scleroderma doesn't have me!

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