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Helen

Foot Problems

16 posts in this topic

Hi Everyone

 

I seem to be losing the padding under my feet. When I walk barefoot...which I like to do at home...the bones on each side of my foot below my toes seem to be touching the floor. I hadn't noticed until a few days ago when I had a look to see why my feet were sore, and got a shock to see that the padded part is quite flat.

I suppose this is just another lovely part of this disease. :( Was just wondering if this was normal for us scleros.

 

Thanks for listening

 

Helen

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Hi Helen,

It's good to see you posting again, I as well have lost all padding in my feet, I cannot walk bare foot anymore. If I don't have any socks on my feet it feels like bone on bone. I have seen a podiatrist which has recommended things like insoles and gel supports etc. Both my arches have also collapsed, I have to wear at least two pairs of socks and slippers when I am at home.

 

And yes, I think it is also scleroderma related.

 

Take care

Celia

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Hi Celia

 

I think I will have to look into gel supports or something like that. Only problem though, I have trouble wearing closed in shoes as I still have problems with my toenails. Dr said it is a fungus under the nail and not much you can do about it...very sore.

Haven't been posting much as other than my feet and toes have been feeling pretty good lately, drugs are working well...lol. I still get on every day though to keep up with everyone.

 

Hope you are getting some relief with your problems.

 

Helen

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Hi Helen ~

 

Yes, good to see you post again - sorry you are having feet problems. I have not experienced that one yet - just every other one including the fungus :P (nice subject huh?) I am about to have my pinky toenail removed!


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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I am not a doctor, but there is quite a bit of podiatry information online. Loss of the fat pad under the ball of the foot is actually quite a common problem in the general public and is worsened with age and particularly in women. As Celia indicates, it is important to provide some kind of cushioning, make sure you have shoes that fit well and socks that are not to loose (will move around inside the shoe) or too tight, causing the same problems as tight shoes. Gel inserts are good. I have also found that sheepskin lining helps with the overall cushion effect, not to mention keeping the Raynaud's toes at bay with their toasty warmth.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Hi I also have lost the padding on my feet and hands I some times walk on tip toes as it hurt so much very strange and very painful Lynn

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Helen, I don't know what you are using to treat the fungus under your toenails but, would like to offer a suggestion. Something I learned from my grandmother and also read years ago in some of my mother's cosmetology books. I never read this information in any of my books. Anyways, you have probably heard that gelatin helps your nails go strong and healthy. It also helps toe nails to become strong and healthy. I have told this information to others in the past and they have had a couple glass' a week of a gelatine packet in a glass of water. It cleared up their fungus when other medications didn't. It took about 3 months. If you are in to trying something that could work and might give you relief this is a cheap and non prescription or non harmful remedy. If you try it and it works for you, just let others know and let me know so that I can keep passing this information along. If nothing else it is something to drink that isn't water.


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Sheryl, thanks for the information. I was using tea tree oill but had to stop for a while as one of my toes got infected. I will certainly try the drink as the sore toes are driving me crazy. Of all the sclero problems this one is really getting me down. Will let you know how it goes.

Thanks for everyones replies.

Helen

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Hello Helen

 

Loss of soft tissue in the feet is common in sclero, according to my rheumatologist it's the walking on pebbles sensation.

 

In addition to no padding the skin on my feet is still hard and restricted which makes standing/walking my least favourite thing. I too resort to walking on tiptoes at times.

 

I am afraid that I have had to convert from wearing fashionable shoes to well comfy ones and to add insult to injury I have to wear a size bigger than normal. My now stick like calves add to the overall impression of having huge feet so the comfy shoes are even more visible....yuck!

 

At my 40th in June which was a black tie/evening dress affair I could not help but show everyone my butt ugly, flat, black padded, shoes hidden under my long, elegant dress......and I was never going to descent into the realms of comfy shoes before 90! :lol:

 

Perhaps a different size shoe would help you?

 

Take care

 

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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I too have no padding on both feet plus my arches are gone too I have to wear arch supports and I am not to go barefoot but I do, or I wear my favorite sandals. I also have bunions on both sides of my feet and on both feet. I do need to see a foot doctor again I think my right side of my foot might be broken or something plus my one toe next to my big toe hurts and is been turning red. my toes seem curl over since I can remember but never thought about it until now. So yes our feet can be affected by sclero too.. Sam


Sam

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Helen,

 

I was flat footed before my diagnosis with scleroderma. After my diagnosis, I noticed problems with my feet almost immediately. It felt like I was walking on pebbles. I cannot walk barefooted outside or in my house. It is too painful. I usually wear cushioned socks or cushy slippers around the house. I haven't made an appointment with a podiatrist because at the hospital I go to, their podiatrist only sees diabetic patients. Finding comfortable shoes is also an ongoing problem. I did find a specialized shoe store that caters to people with foot problems and I was surprised to find they had a really nice selection of shoes. Expensive but well worth it!

 

I would agree, yes this is definitely sclero-related.

 

Hugs,

Razz


Live well, Laugh often, Love much

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Hi all, I too, have loss of padding on my feet and that "walking on pebbles" sensation, along with stiffness in the feet especially first thing in the morning. I was surprised to learn from my rheumatologist that this was part of my sclero (I have limited sclero, mostly GI symptoms, no Raynauds nor skin hardness). I hadn't even mentioned the feet soreness to the doctor, but he saw on my history that I had had bunion surgery (both feet, on the pinky toe side) and asked about the feet. I've been prescribed lidocaine 5% patches, which I put on both of my feet along the arches before I get out of bed -- has helped a lot! I'm not sure if these patches would work for those with Raynaud's, as the patches feel quite cool when first applied...but maybe these would help some of you!

A new fan of comfortable but unfashionable shoes!,

red

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I was also told that fungus can be cleared up if you soak your feet in part water/part white vinegar....about 10 minutes a couple of times a week....I never had fungus but it sure helps better than a pedicure to soften my rock hard heels.


Sending good wishes your way!

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I too have lost the padding under my feet and it kind of spooked me! :blink: I didn't realize it until someone mentioned it on a previous post. My feet hurt quite a bit and I too have to go for comfort over cute. Being a former shoe diva that was hard to do. ;) I have still found it hard to part with my "cute" shoes even though I will probably never wear them again.

 

Amanda, I almost fell out of my chair when I read "I could not help but show everyone my butt ugly, flat, black padded, shoes hidden under my long, elegant dress." I have a pair of shoes that fit that description to a tee, but they are oh so comfy and wear them often. Even to the office!


I may have Scleroderma, but Scleroderma doesn't have me!

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I woke up this morning and my feet hurt soo bad, luckly my office was closed d=today due to the holiday, otherwise I would have called in sick. My feet hurt so bad this is the first time this ever happened, It took me over an hour to go to the grocery srore for a few items, Im actually limping,

Last week I went for a pedicure and they used the razor and removed all the dead skin, my feet felt great, except that I started to feel them hurt and by today I can hardly walk, not sure if the two are realted, I \guess no more removing the dead skin, it was a cushion and now I have none....

 

Any advice on when this will go away,..

 

kellyA

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KellyA

 

I had a pedicure once when they did that to me too...and I had pain for a couple of weeks, the more I walked, the more pain I got as time passed till it finally covered over or whatever it did to heal......I'm certain that mine was caused by the pedicure razor (she went too deep)....I've never let them use the razor again on me for any other pedicure and that type of pain has not happened since. Not sure about you, but I find when my feet have a lot of hard crust on the heels, then the deeper I get cuts which hurt when I walk too because they split with my weight/pressure....i just soak my feet in water/white vinegar and use a pumus stone now to keep them softer/smoother....of course, I still go for pedicures with pumus stone to get my toes painted. :)


Sending good wishes your way!

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