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LoriAnn

Staph Infections

3 posts in this topic

Hi,

 

Help!!!

 

I have a recurring staph infection. It started 6 months ago with a rash around my ankles. Dr. thought it was an allergic reaction. It has been back every month and gets worse everytime, now it is moving up my calfs. The rash will go away when I am on antibiotics but comes right back when I get off of them. I now have bumps under the skin that won't go away. I am currently on levaquin and bactrim for 1 1/2 months. I have about 2 weeks left but the bumps are not going away. He says I will have to go to the infectious disease clinic next.

 

Dr. is certain that the weaked immune system from slcero it causing the problem.

 

Has anyone had any experience with this or have any ideas?

 

Thanks for listening.

 

Lori Ann


Lori Ann

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Hi, LoriAnn

 

Sounds like a real problem and I feel for you. I am not a doctor, but while your overall health may have an effect, having scleroderma does not necessarily mean you have a weakened immune system, unless, of course, you are on immunosuppressants. It is an autoimmune disease in which the body is mistakenly attacking its own cells.

 

I do the think infectious disease clinic is a good idea. Have you looked carefully at hygiene issues? Are you wearing socks all the time, for example, which may be harboring the infection? I can remember my mother boiling things when there was a staph infection going on. I do hope you can get some satisfaction on this soon.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Hi Lori Ann,

 

I'm not a doctor either, but I am a nurse, and I've had some clinical experience with this type of thing. The first thing I want to say is don't let this continue on with doctors just giving you antibiotics. See a dermatologist, and an orthopedist - you actually might want to swap out the dermatologist doctor for an internist. I say this because in working together, they can make sure you don't get an infection into your bone. This type of thing can happen when the infection is left too long. I know of one case in particular I was involved with that the patient had to have bone removed. It started out JUST like what you are describing, he went through months and months of antibiotics, it wouldn't completely go away, then he started having pain in his ankle and foot, by the time he got to the ortho doctor he needed extensive surgery.

 

I'm not trying to scare you, but I think it warrants you steady attention in pushing the doctors to take this seriously. We need to be our own advocates most of the time. doctors, just want the quick fix to get you out of the office most of the time in my opinion, it's the patient that does research, pushes the issues and helps them see this is serous that gets the best care. Sad, but true.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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