summer

Pain that won't go away!

7 posts in this topic

For the last few months ,I have been having anormous amounts of pain from the waist up going towards the sides of my body. My rheumatologist is aware and expects me to take painkillers for it. Painkillers only take the edge of the pain it is always there. I have had a pelvic and back xray, it did show up a few things but my rheumatologist has told me as long as I didn't feel numb in the legs I should be fine :( .

 

I have also noticed that If I pull a muscle, which I did awhile back, I am stuck with that pain for good. It does not repair itself after a few days.

 

Has anyone else noticed that?

 

Many thanks

Celia

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Hello Celia

 

I am so sorry pain is the problem and that no one is giving you any relief.

 

I have not experienced the pain you describe but can relate to feeling desperate because of pain. I have only just come to the end of about 6 weeks of excruciating shooting pains in the back of my feet and I have no idea why it started or eased off. It was so bad I had decided to talk to my rheumatologist when I see him in November about severing some nerves, stuff the slow healing. :angry:

 

Why is chronic pain not treated in itself, why need another symptom like numb legs which means what exactly?

 

I realise you have a bit of an uphill climb getting pain treated that is not obviously linked to a symptom and can only echo from others' posts "be your own advocate" and discuss better pain relief because it is out there....yeah I know so are Mulder and Scully and they're more likely to "make contact" before a doctor volunteers good pain relief.

 

Take care.

 

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Now that's an interesting question...what exactly does the numbness in the legs mean? Anyone know?

I have just returned from an appointment with a neurologist, who has ordered yet more tests. I have terrible numbness in my feet and 1/2 way up each leg. I go back in December to have further tests (EMG?) and to get results from more blood work. I am also having an MRI of my lower back (next week).

I am just so frustrated and "TIRED" ~ tired of going to doctor after doctor and tired of feeling so terrible everyday of my life. I can't remember the last time that I wasn't in some type of pain. I can't take anything for my pain because of my stomach issues.

Just needed to vent ,

Thanks so much!

Much love,

Nina (DE)

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Oh Nina sorry you feel so bad at present, sick 'n' tired of feelin' sick 'n' tired. Please remember that although it feels like it always has been and always will be like this it hasn't and won't be. There will be better days for you and meantime vent, vent, vent! :lol:

 

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hey ced,

 

You have had such a horrible time of things and I am so sorry. Maybe it's time to see a different kind of Dr again. Gyn or internal medicine might be able to help and be a little more supportive. When something is so relentless a second opinion could be helpful and most doctors are not bothered by a second opinion.

 

Keep you in my thoughts.

 

Judy


A happy heart is good medicine.

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Thanks Amanda ! I love this forum for this exact reason...

I know "This too shall pass." I just forget every now and then.

Much love ,

Nina (DE)

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Oh Celia,

 

I'm sorry you are dealing with this increased pain. Have you tried any alternative methods, such as massage, chiropractic or acupuncture? They really help me.

 

I hope you can work this out soon.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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