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Update from Cardiologist visit!

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I have just got home from seeing my Cardiologist at the hospital.

Many of you may remember that for nearly over a year now there has been some speculation to me having pulmonary hypertention. On one of my baseline echo's it did state that I did have PH, but after another echo I was told probably not. I have Tachycardia which is now being controlled with medication for some time now. My baseline pulmonary fuction test was above normal in all areas, 6 months later, my DLCO was below normal, 3 months later after another test it had remained stable. My SOB for the last 6 months was only on exertion, it has now been for the last 4 days constant.


After a full examination by my cardiologist we are back to where we were 12 months ago, speculating whether I now have PH. My blood pressure which is normally quite low is now 140/98 and I get quite dizzy at times. I am due to have a PFT again in two days time and a 6 minute walk test and echo on 1/12/08. My cardiologist is now awaiting those results before he acts any further. I am reluctant to see anyone else as he is supposed to specialise in PH. He is very reluctant to do a right heart catherter unless is is necessary because of the risks involved.


Is anyone able to tell me whether the lower number of the blood pressure which in my case is 98 is anything to do with PH?


Thanks all for listening.



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I'm so sorry to read that you're having SOB again. That is such a hard symptom to diagnosis because it can be due to so many things. You ask if the 98 in your BP reading. I am not doctor so please verify with your doctor, but in my understanding pulmonary hypertension is not affected by hypertension (measured by your BP reading). It does sound like you have a good doctor, so just keep pushing until you find the root cause of this problem.


Big Hugs,

Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Sorry again for what is happening to you. Janey sounds pretty solid in her advice and about you Doctor.


Keep you in my thoughts.



A happy heart is good medicine.

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