Jump to content
Sclero Forums
Lucy

Systemic scleroderma

Recommended Posts

I have been confussed about something and hope maybe someone can clarify for me.

My diagnosis was said to me as Diffused Scleroderma, but I often see the word systemic in the posting I have read and information. Is this a different kind of SD other than Diffused Scleroderma or just the accurate description of the Scleroderma disease regardless of type? Just not sure what Systemic means. Thanks


Lucy

Diffused Scleroderma

Diagnosed Dec/06

First Sympton Nov/05

Share this post


Link to post
Share on other sites

Lucy,

You are not alone! Even the doctors use different terminology for the same form of scleroderma. To answer your question - diffuse scleroderma is a subtype of systemic scleroderma. Here is a link to a brief summary of the Types of Scleroderma. There are two main types (Localized and Systemic) but each of them have their own subtypes. You can click on the links provided on the page to learn more about the subtypes.

 

Hope this helps.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hello Lucy

 

What's that song...you are not alone....

 

Not long after diagnosis I read a copy of my rheumatologists letter to my general practitioner and it said I had diffuse cutaneous systemic sclerosis and I remember thinking...but I thought I had scleroderma :huh: ... Took me ages to realise it's the same as diffuse scleroderma systemic sclerosis. Took me even longer to work out CREST and limited scleroderma were the same thing. :rolleyes:

 

Take care.

 

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×