faith 3

Morphea (en coup de sabre)

8 posts in this topic

Is there anyone out there with morphea (en coup de sabre), I've had it since 2000, It is healing!!!!

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Hello Faith3

 

Welcome to the ISN forum where you will get excellent advice and wonderful support.

 

I have SSc so can't comment but am pleased nevertheless that you are healing.

 

No doubt a member with en coup will join in and be better placed to share your experience.

 

Take care.

 

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Faith 3 ,

 

I don't have morphea but wanted to say "hello and welcome to the forum." I am on because of my 20 year old son.....he was diagnosed with sine Sclero initially and switched to UCTD. It's been two years ago this October.

 

Take care, Everyone.

Margaret

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Hi faith 3,

 

That is wonderful news!! I do not have what you have but it is a relief to hear that someone is healing. May you continue and completely heal. I think most of us have healed in some way. This forum is great for that and the people here are awesome. Welcome.

 

Congrats,

 

Judy


A happy heart is good medicine.

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Dear Faith,

 

Welcome to Sclero Forums! I'm glad to hear your en coup de sabre is healing. As it happens, it is the natural course of scleroderma to wax and wane (get worse, then get better). Sometimes that is a continuing cycle, and sometimes, it remits either partially or completely and then stays that way.

 

Usually the localized forms of scleroderma, and particularly morphea, begin to clear up on their own within 3 to 5 years, even without any treatment at all. However, many people do need treatment, particularly if they have severe or rapidly progressing involvement...and there are fairly good outcomes with various treatments for localized scleroderma, too.

 

Even when things are improving or settling down, it is still important to maintain regular follow-ups with your scleroderma expert, on whatever schedule they determine. That way if things do happen to reactivate, they can be caught in time and perhaps treated (if necessary).


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Welcome to the foums. I have quite a bit or morphea, but have not experienced a "healing" stage as of yet. I hope yours continues.


I may have Scleroderma, but Scleroderma doesn't have me!

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Faith,

Welcome to the forums! Great news that your morphea is beginning to heal. Please keep us posted on the progress.

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Hello,

 

i'm glad for you. I have (had ?) a morphea too, on the cheek, it is almost invisible now and have spotted to spread for a while now, I just have (had ...) a hollow since the fat have disappeared. But, Monday, I got a lipofilling.

Take a look of my topic : http://www.sclero.org/forums/index.php?showtopic=6655

 

I'll try to send some pictures.

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