Jump to content
Sclero Forums
georgette

Remission?

Recommended Posts

hi everyone, so razz does that mean that if you even go into remission will your hands stay that way? my fingers are fat and have a curl in em I can't make a fist but nor can I straighten em. I guess I'd like to know how many sclero hands get fully distorted like razz's as opposed to how many hands stay where mine are at. I can't even begin to think how tuff life must be for you with your sclerodactyly. hugs georgette

Share this post


Link to post
Share on other sites

Georgette,

 

I had symptoms for Scleroderma for over ten years and I was officially diagnosed in March 2004. I believe I am in remission. I took Cellcept 3000 mg for over two years. I have damage to lungs and esophagus which cannot be reversed. My skin is normal now. I have Raynaud's, but I take medication for Raynaud's in winter months only for 3-4 months. I regularly do yoga, breathing exercises, and walk for 2-3 miles a day. I also try to do activities I enjoy which have helped me to come out of severe depression.

 

So no scleroderma medications, and no depression medications anymore.


Kind regards,

 

Kamlesh

 

 

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


×
×
  • Create New...