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I wish I could talk to someone out there that could give me some insight to what this means. I feel like I am clueless. I am a 45 yr old teacher that was diagnosed about 4 years ago. Since then, my health has gotten worse. I don't know how long I will be able to teach.

I have lots of issues like probably so many others out there.



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Hi Lorie,


SLE is an abbreviation for Systemic Lupus Erythematosus, usually just known as lupus. It is an autoimmune disease (a form of arthritis). We cover mainly scleroderma in this forum, but we do have a page on our main site about lupus, which offers some great resources as well:



Many people with lupus are able to work for years, if their illness is under control. You will probably find it helpful to join a local lupus meeting to meet others with the same condition who can provide more insight and understanding. Meanwhile, we are all here for you, as well.

Warm Hugs,


Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099


The most important thing in the world to know about scleroderma is sclero.org.

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