Clementine

Really dry, rough fingers

11 posts in this topic

Hello. I have never had skin involvement with my systemic scleroderma. My hands are so dry though. They are rough and dry mostly near the cuticles, the finger tips and the sides of the fingers. It feels like I've lost some feeling in them too, because of the roughness. I've noticed this over the last year but it seems like lately it's really coming to my attention. I am just wondering if this is just normal of my hands getting older or if I need to be concerned. Someone once compared it to feeling like super glue on your hands, and that's how they feel. They aren't tight and shiny though.

 

At first I thought it was harsh dishwashing detergent so I switched. I almost always use gloves anyway, but as you know, it only takes one washing without gloves to dry the hands out.

 

I think I need to compare my hands to someone else's my age and see the difference.

 

Thank you.

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Hi Clementine,

 

I have the rough skin on the outside of my right index finger. It started up just around the same time as my sclero. There's a teeny bit on the oustide of my left index too but mostly on the right handed finger. Feels rough and callous like. Does not feel tight or waxy though. I do feel it's related somehow since it started when my knuckles started to get thick. Also feels like a eczema I would think so could be that.

 

Karen

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Clementine I have very dry hands which are very rough and at times it feels like I've got a furry coating on them, they also have very thick hard callous like skin at the sides and round the top of my fingers. I have never had dry skin until about 18 months ago, also the cuticles are very thick and ragged with some of them beginning to split which is quite painful and I can't seem to get rid of it. I use endless amounts of hand lotion and like you try to use gloves whenever in water so I think it must be related in some way.

 

Jensue

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Hi clem, I'm sure it is not due to ageing, firstly you are so so young and secondly I have seen lots of eldrly ladies (i.e over 80) with lovely soft hands. Sound so like my hands and pretty typical of scleroderma changes to me - although you have sine don't you?

Lizzie

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Hey Clem, I too have this problem. I think for me it's partly to the weather, partly being dehydrated because I forget to drink often and partly due to age. Find a good nourishing cream, or get a manicure and see if that helps. Have the use the wax. I know you've done some traveling recently as well, so the change in climate may be it.

 

Loves,


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Thanks gals. I will be very happy if this is just dry skin. My finger tips are actually hard. I don't know. I have tried a lot of things. If it's just dry skin I can deal with that and do a few back flips, but I worry that it's progression. I do have sine sclero but things can change.

 

I'll keep an eye on it. I'll feel more confident when I get back on Cellcept. It could just be me being paranoid since I have been off of it for months.

 

Aww Lizzie, thank you about saying it's not age. I am just 41 but I used to be a sun worshiper and lived at high altitude for 15 years. What was I thinking?

 

Thanks,

Clem

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Clem

 

Yours sound just like mine in all aspects, cuticles too. Very dry and rough on the finger tips although not on every finger...thumbs, index fingers, and middle fingers more noticeable on me (right hand is rougher than the left)....it's just like it's chapped on the tips and the roughness goes up the sides of only some of my fingers and also up on some of my first joints from the cuticles upward as well...I've really noticed my finger tips hook/snag in fabrics too....lotion doesn't seem to soften mine any...been very slowly going on a couple of years now for me.


Sending good wishes your way!

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I drink lots of liquids, especially water and I've noticed the last few weeks that the tips of my fingers are very dry, especially around the nail and in the corners are splitting. I had the same thing happen last year and that was before I was told I had sclero.

Gigi


Gigi08

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Hey. My fingers are just like what you described. I have lost a ton of feeling in my fingertips. I have these weird thick lines at the tips where my nail stops. It almost looks/feels like the skin is being pulled back from under the tips of my fingernails. My fingerprints look "thick" I guess I'd say. Also, I could probably stick a saftey pin through the extra skin on my fingertips and not feel a thing. My fingers themselves still alternate between HUGE- swollen and red and TIGHT- very shiney and smooth feeling.

You know the top bend in your fingers, like right below the bottom of your nail.. That area seems to be getting real shiney too. That skin, leading up to the bottom of each fingernail where the cuticle meets the nail is where it's reeeally smooth.

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Hi,

 

I was the one describing it as superglue feeling. Well it is interesting to see, that most of the descriptions match.

The insides clearly are much more leathery and dry feeling and some fingers are more affected than others (some slightly swollen, others sometimes really hard on the tips and if you put them in water, the hard part (I bet skin all the way to the bone rather than normal fatty stuff), strangely feels like rubber when pushed and wet).

 

Fingerprint almost gone and shiny on some fingertips and the normal lines nor really feelable but embedded deeper in the skin still shining through. If pushed with a needle, it squeezes in a whole area and not just a small part and it bounces back slowly, and if dry the dent, that is caused by the needle almost snaps back. Like the safety part of shoes of handymans that are reinforced in the tip to protect that toes...that's pretty much how it feels in the fingertips of the affected fingers....the other less affected, still feel very dry on the insides, outsides and even in between...strange dry and sticky, hard smooth feeling, very different from normal.

 

Still not diagnosed though....next week is another checkup to see what my recent treatment for the bug that supposedly caused this too...has had effect.....however all clinics have announced that they want to strike....hopefully not another 2 month for the next appointment if they do....we will see.

 

But from all I can read from most of you, mine is pretty comparable and that is, why I am pretty sure (among other things) that this is a collagen disease...simply too many skin changes that nothing else can cause in that extent.

 

No Raynaud's though, no ANA, slight CRP (supposedly caused by the bug they found).

 

K.

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