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Wohali

Disability for CREST?

7 posts in this topic

Has anyone else gotten disability for CREST? I just worry that somehow that isn't "enough" to qualify. But I guess I am being paranoid because the doctors are also putting chronic pain and fatigue, my brain injury and PTSD on my Soc Sec paperwork. Though I worry that even that isn't enough. I pushed myself for years trying to work while I was progressingly getting sicker so I've had all this stuff going on for awhile and am afraid they will not understand why I can't work now. Course I got fired from last two jobs for being a slow learner because the brain injury makes it hard to learn new things. I'm so scared and don't know how I am going to keep a roof over my head.

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There have been many discussions of disability claims on the forums and each story is a little bit different. One important thing to note, however, is your capability of doing the job which you used to be able to do. So it is not a question of whether you have 'enough to qualify' but whether in your circumstances, your medical condition prevents you from doing a certain job. Having CREST may limit one person's ability to work and another may be able to continue working with CREST indefinitely.

 

Your brain injury has obviously affected your ability to hold a job, as you have told us. Feeling guilty is often part of the disability process and something we all have to cope with in may ways, with or without disability. Hopefully our medical page on Coping with Scleroderma may give you some useful perspective.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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I think a lot of the issues I have is from having an unsupportive family, namely my parents as I am single. I was told that I could move in with my dad since I filed for disability but that I had better find a job once I move in. Uh that kinda is counterproductive since I can't work because of my multiple health issues. So I've been raised being told I was a lazy no good and need to work so now I feel guilty not working, not to mention I just don't know what to do with myself with the extra free time. It doesn't help I'm not getting proper pain management so I am probably hurting more than I should have to. I really don't know what to do and at this point may be living out of my car within a matter of months. I was told section 8 housing is up to 3 yr waiting list if I want to stay in this town so I can stay near my doctors. If I move back East to live with family not only do I give up my doctors but also the possibility of state health care program to take over when I discontinue COBRA insurance.

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I received disability and I have CREST, but I hadn't been diagnosed with CREST when I received disability. I have Sjogren's, Fibromyalgia, a messed up right hand and a bleeding stomach. I don't think that you will have a problem as long as you have a doctor that knows how to document things. Good Luck!

Nan

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Wohali I am sorry things are so difficult for you right now. Coming from a background of negative reinforcements just gives you baggage you don't need to carry. Can I suggest you drop it at the door of the people who gave it to you. Just own your stuff, give others back theirs.

 

Your stuff is that of someone wanting to work , progress and have a good life whilst battling a catalogue of health issues. If it turns out you can't continue to work you do what's best for you and apply for everything you can get. You've paid taxes so contributed now it's your turn to be contributed to.

 

You are doing everything you can to continue living with dignity for which you should be applauded.

 

I hope you get whatever you ask for and more. :lol:

 

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Wohali,

 

Wish you the best with disability and that everthing works out for you so you don't have to worry about things so much. The disease is enough to worry about. The doctors are backing you and that is good. Will keep you in my thoughts.

 

Don't be too hard on yourself; you do have problems that are real.

 

With gentle thoughts.

 

Judy


A happy heart is good medicine.

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