pieski

Eyes

9 posts in this topic

Has sclero affected your eyesight? Mine has gotten so much worse in the last couple of years and am wondering if it is from the disease.


~ Teresa~

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hi , yep my eyes were the first place that was a sign of scleroderma , my first symptom was the eyes just ached ,followed by infections and pain with deminished vision, went to an eye specialest and he was the one who told me it was an autoimmune problem that was the begining of my sclero journey , now 4 years down the road my optic nerves are shrinking , some days my eyes are so bad with pain I just have to keep them closed as I can't tolerate the light nor air on the eye balls , my right eye is worse than the left ,reading is real hard as you have to move your eyes from right to left to read a sentance and any eye movement causes pain ,it is even harder when the print is small , so yeh sclero does effect the eyes unfortunatly , hugs georgette

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Hi Teresa and georgette,

 

Yes, my eyesight has also worsened much more quickly, since I've had Scleroderma.

 

I also have Sjogrens,, so it can't help, either.

I have a cataract, which may/may not be effected, than if I didn't have Sjogrens...

 

Hugs,

Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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I'm not really sure yet if I definitely have Scleroderma, but I definitely have many of the symptoms. I've been wearing bifocals since I was 32, and about that time is when my dry eye began. I'm now in my second pair of trifocals, and I actually have two other pairs of glasses to use for reading and the computer. My eyes get so tired and dry in the evening I can barely keep my eyes open. I don't have good luck with over the counter drops, I've tried so many and haven't found one I really like yet. I use restasis and that helps a lot.

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Hi pieski,

 

Sorry you are having problems with your eyes. I believe scleroderma can affect your eyes. Mine are and yes the eyesight is bothered by some of the changes. There are times during the day my eyesight is so blurry I can't see. They are also affected by the dry heat. This year and last year especially the fall changing into winter weather I noticed alot of dryness after the heat went on. Have been using artificial tears frequently. I have water ports for water throughout my house that fit into the venting system in hopes to keep some moisture in the air. Next week will have plugs put into my eyes ducts to inhance tearing if my eyes have cleared up enough with drops. So far have only been told it is from scleroderma and maybe sjogrens. I also have had a dry mouth and nose this past year and the numoisten lozengers and nasal spray help somewhat.

 

With gentle thoughts.

 

Judy


A happy heart is good medicine.

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My first symptoms was the Raynaud's but not long after I started having issues with my eyes, I had numerous tests done and kept being told they thought it was linked to my autoimmune system, my bloods always showed borderline and was placed on steroid tablets to try to reduce the problems. Like others have already said I get the dry eyes and find that towards the end of the day my eyes are so red & sore it is hard to do anything, I now have drops for my eyes which has helped somewhat but have had quite a bit of damage to my central area of vision due to 'blister' like things in my eyes. I also find that my sight is changing all the time and need to have my lenses changed frequently.

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I had noticed a change in my eyes last year and I went and brought me some readers. It does help, I have a hard time reading normal size print now. Its all blurry. My husband and I have been talking about making eye appoinments for the both of us. I'm just afriad what they are going to say but I must suck it up and go. Sam


Sam

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I just posted on having dry eyes. I've not been on the forum much so I missed this one.

 

I have really dry eyes and wonder if I need a humidifier. I have always been reluctant to get one because of the fear of creating more germs.

 

I live in a pretty humid area though....but the heat is on.

 

Sorry to hear you all have eye pain. I feel like a whimp.

 

 

Clem

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Clementine,

I use a liquid that kills the germs in the humidifer. It takes a capful in a gallon of water.

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