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ElizaJ

Scleroderma Questions

7 posts in this topic

I was wondering about something that has been bothering me alot. I just went for annual eye check and the doctor said my vision had changed and I got new glasses, eeewwww bifocals!!! Anyway, she also diagnosed my Sjorgen's. What I was worried about though is that it seems my eyes have gotten worse, more blurriness. I can't see a darned thing clearly even up close! I know that with Sjorgen's the eyes are dry and so is my mouth, but does all the other stuff come with Sjorgen's? Also, will punctal (sp) plugs help my eyes enough for me to go get them? Will it help with the blurriness? My eye doctor suggested the plugs but I was not sure. All this new stuff is scaring me silly. I have not been able to take medication either for fear of a reaction to it. Anyway, I would appreciate any info on the plugs. Thanks again!

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Hi,

I recently went through the same thing. When your eyes are dry, it does affect the "blurriness" that you are describing. My doctor mentioned the 'plugs' too, and then perhaps Restasis, but he suggested just moisturizing eye drops first. I've been using them several times per day and it is helping. I will put off getting the plugs for a while, but he was more optimistic about the plugs than the Retasis. He said Restasis take 6 months to see if they even work and most of the time they don't.

 

*whispering* I think I need bifocals too, but won't admit it yet. hehehe


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hi,

 

I have sjorgens...and plugs!!! I've had plugs for about 4 years now. They have been great!!! I tried the over the counter drops and restasis....Personally, I like the plugs. It sounds worse than it is. They put them in the same day. They put a drop of something in my eye to numb it and put it in. You don't feel them all day or night. Every once in a great while..my eyes will feel dry...like in the winter...so I use over the counter drops for the days I need them. Really, I can't say enough about the plugs and how its helped. As far as bifocals and blurriness....i still have it as I am almost 50 and well...goes with the territory.

 

Hope it helps...Hang in there as you sound like a strong person and this is something you can get help from.

 

Carol :rolleyes:

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Hi,

My eyes are going blurry too. I think it’s the Sjorgen's because my vision seems fine. My doctor has me on drops and a nighttime salve. He recommended restasis if I the drops don't work but they seem okay, they're just expensive. I see better when they're lubed and during the day. When I take my PM meds - that say on the bottle may cause drowsiness - things are always fuzzzed.

 

Humm don’t know about the plugs although I’m reading that you can’t feel them and they keep tears from draining so I suppose you might see clearer because they’re wet. But, they don’t always work so tear ducts may need to be closed surgically.

 

I also take flax seed because it’s good for you and I’ve heard it helps relieve mouth and eye dryness. I’ve read that many other nutritional supplements may help, as well as eating fish. You may want to research that.

 

Best of Luck & Remember you're not alone. It's all a fuz for me too!

 

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

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ElizaJ,

I go to the eye doctor's once a year and she has to strengthen my prescription every time. I don't have sjorgens but I do suffer from bluriness and floaters. It very irritating because my job is writing and computer work. The doctor says there is nothing that can be done about the floaters, but the blurriness could be due to dry eye as well as some of the meds I'm on. I do use eye drops and they definitely help.

 

I finally broke down this last time and went to bifocals which I have fought for years; however, I chose the progressive lens and I love them! Only the wearer knows they are bifocals and they work great. My hubby got them also and he too loves them. It did take him about 3 weeks to get use to them whereas I loved them the first time I put them on.

 

In reference to the plugs, I did find some information on WebMD under Eye Health: Dry eyes. Apparently there are temporary plugs that allows the user to try them out before making a decision on permanent plugs. If the eye drops don't work for you, you might want to ask your doctor about trying out the temporary plugs.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hi,

 

I too have dry eyes and the blurriness that comes with that. My opthamalogist had me try the restasis....it did not do anything for me (and was very expensive), so I just use over the counter drops (I probably use drops 3-5 times a day depending on what I am doing). When I do anything that causes more eye strain (working on the computer, crocheting, etc), I have to use the drops more often.

 

I never had to wear glasses until I turned 40 (I just turned 45). I had to have an eye exam because I started Plaquenil. When I went to the eye doctor, he said, "I know you know you don't see well close up, but you don't see well far away either". I had to have bifocals (went straight from no glasses to bifocals!) and, like Janey, I opted for the progressives. It took me about 2-3 weeks to get used to them, but now I love them.

 

Warm wishes,

Heidi

 

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Thanks so much y'all. I have all the information I need now and I feel better for it. I thought my eyes were getting worse fast. I went with the progressives and am still adjusting but find that each day is better. I will check out the plugs and do use drops for the dryness.

 

Again thanks to all of you, warm hugs and wishes in this new year!

 

Eliza J

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