HeatherT Posted January 4, 2007 Share Posted January 4, 2007 Hi there, I just met with my Rheumatologist and he wants to up my dose of Cellcept from 2 to 3grams due to my rapid progression. I was wondering, of those who are on cellcept, what dosage are you taking? Is it typical to take 3 grams? For some reason I thought 2 grams was the typical dose, and I am a bit nervous about upping it. Thanks for the information. Heather Quote Link to post Share on other sites
LoriNC Posted January 4, 2007 Share Posted January 4, 2007 Heather, When I was placed on cellcept it was with the intention of going to 3G if my body tolerated cellcept. Lori Quote Link to post Share on other sites
Claudia-DR Posted January 4, 2007 Share Posted January 4, 2007 Hi Heather! I'm sorry to hear about the progression of your sclero, but I'm happy to see that you have a Dr. who's willing to treat it aggressively. I too was on CellCept for a while, taking 500 mg. I took such a small dose since I only weigh about 90 lbs. and my progression was mild. I understand that going up to 3 grams seems like a big step. I hope your body tolerates the increased dose well so you can start feeling better soon. Your son is beautiful by the way. Healing tropical wishes your way, Claudia Quote Link to post Share on other sites
Guest Jennifer Posted January 4, 2007 Share Posted January 4, 2007 Heather, I started at 1.5, then 2 and up to 3 grams, and like Lori, it was only if my body could handle it. My Dr. did say they had not experimented with over 3 grams for sclero treatment. I weigh 120, if you care to factor that in. I have not had side effects so far...but wonder if there will be problems in the future. Oh well, live for today. Take it easy, Jennifer Quote Link to post Share on other sites
barefut Posted January 4, 2007 Share Posted January 4, 2007 I've been on 2g for a year. I'll be asking to go up to 3g at my appt on the 30th regardless of my PFT's because of the increase in my other symptoms. I'm worried that because my other symptoms have increased, my PFT's will have decreased. Good question because I have wanted to know how common a 3g dosage is too. I have also noticed that a lot of lupus patients have started on Cellcept. Quote Link to post Share on other sites
HeatherT Posted January 5, 2007 Author Share Posted January 5, 2007 Thanks for all the replies. I have started taking 2.5 as of yesterday and in three weeks I will go up to the full 3 grams, provided my bloodwork is good. Lets hope it improves the way I feel these days. Heather Quote Link to post Share on other sites
Guest Jennifer Posted January 5, 2007 Share Posted January 5, 2007 Heather, Yes, I have to have lab work every two months since being on Cellcept. Good luck!! Jen Quote Link to post Share on other sites
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