Sheryl

Sleep Apnea

11 posts in this topic

I went for the sleep study last night. Can't say I got much sleep, but did alot of dosing on and off. I had more trouble getting comfortable and them wanting me to sleep on my back for at least 2 hours. I am not a back sleeper so that was very uncomfortable. The lady told me you have more breathing difficulties show up when sleeping flat on your back than any other position. I was so tired when I got home this morning I went to bed and slept for almost 3 hours. I have to call in for my results in two weeks. Or wait until I see my rheumatologist in April. I will call from Florida to see if I can get partial results. I took my own pillow so I would be very comfortable. When I thought I was finally sleeping it was up and at it. 6am they woke me up. I was up and showered and home and back in bed by 7. My best sleep is from 5 to 7. So I slept from 7 to 10. It worked. They sure put alot of wires with electrodes all over you. Even up your nose. One to register temperature and one to measure oxygen exhaled I believe. Not sure on that one. I am still so sleepy I can't think properly. All for now. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Hi Sheryl,

 

As you might know I'm a nurse and these sleep studies have always been a bit of a joke to me. People rarely sleep enough or the way they would at home in order to obtain the data necessary to make a good clinical decision.

 

I very rarely sleep as it is unless I take a sleeping aid, and even then I don't sleep all night long, so how you could get any sleep with all those wires on (even up your nose) is a shocker to me! Glad you were able to rest a little once home.

 

I'm really sorry you had to undergo this and I truly hope they find something that can benefit you.

 

Much love,


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hi Sheryl,

At least it is over and hopefully they will have something to tell you in a few weeks. My hubby had to go through it twice and swore he would never do it again!

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Hi Sheryl,

Thanks for sharing the tip about having breathing difficulties when sleeping on your back. True? Well, it's a good thing to note.

 

Electrodes up your nose? What if you have to sneeze? he he

 

Hope you get some answers,

 

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

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Hi Sheryl - I too, just went through this. Buy the time they put on all wires and it felt like they were drilling into my head, and this guy liked to chat,...it was 10:30 pm and at that point I was all "wired" up, pun intended. I didn't sleep at all. Like you, my best sleeping time is around 5 am - whenever. I find out the results on the 25th. It all seemed a bit silly to me. Who knows!

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So how do they plan to get good data when there is no sleeping during a sleep study? It sounded like they did everything they could to keep you from sleeping. How do they expect a person to sleep on their back when it's not normal for them, not to mention all the wires. I hope you sleep better tonight!

 

Thanks for the description. I go for a sleep study next week so now I know better as to what to expect. Let us know when you get the results.

 

Big Hugs,

Janey


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hi,

 

Wow! That sounds like it was no fun at all. I have been wondering if I should go for a sleep study as my husband has told me that I snore so badly that the rafters shake. He jokes that he can not believe that much noise comes from as small a person as me. I have wondered about sleep apnea but really do not want to go through a sleep study and your description just confirmed that for me. I will be curious to hear what they have to tell you....so please do keep us posted (even if it is from Florida).

 

Warm wishes,

Heidi

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Hi everyone,

 

I had my sleep study at the end of December. I don't have any results yet, but I felt the same way Sheryl did. Trying to sleep on my back was impossible, and those prongs up the nose were so uncomfortable. I also came home and slept for 5 hours. The tech said I did snore, but I didn't ask if I had apnea. He said I twitched alot. I have no idea what that could mean. I look forward to hearing all the results.

 

Take care,

 

Laura

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I hit the shift key instead of the enter key and my letter went off into cyber space somewhere. I sure wish there was a way to retrieve them by clicking the mouse or the back key. But, POOF it just disappears. I have to start dinner and it will take my too long to rewrite what I wrote. It wasn't that important anyways. Yes, lets all do a type of comparison with our results and see if anything shows up that we have in common. Well, off to fix dinner and finish packing my suitcase. I will be packing up my computer tomorrow afternoon or evening. I'm so glad I get to bring my computer. I just love being able to stay in touch with everyone and all that is happening with all of us. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Sheryl,

 

I'm sorry it was so bad for you. I had a sleep study last Jan. It was on a friday nite. I was so tired that by the tiime they had me all wired up, I was asleep within about 20 minutes!

 

I found out that I had some hypopneas (?), a few apneas, but overall the biggest finding was that I have very poor sleep efficiency. Now I have been telling them that forever!!!!! But nobody will give me anything to help me sleep....maybe that will change with the change in doctors I'm making. I can only hope. zzzzz.....

 

I"m glad you can take your 'puter too. Let us know what you find out. And have fun down there.

 

xoxo emmie

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Emmie, my doctor prescribed Xanax to help me relax and help aid my sleep. I wasn't allowed to take it the night of the study. Maybe that is another reason I didn't get any proper sleep. Anyways, it isn't suppose to be a sleeping aid but it works. Its a bummer when you ask and your doctors and they don't think it is neccessary to give you some releif. My regular family doctor even gave me a couple different products to try. Now, I sleep but in short bursts. But, with the Sclero and winter and the fatigue, I want to sleep quite alot. OH! Yeah. I have been trying to do things to make myself stay awake during those certain days each month I am effected. I should make a journal and then I would know how many days each month I am bothered with it. But, when the need hits. I can't seem to fight it. I just crash. Once or twice a day for at least an hour. So strange. Started happening about my third year with the Sclero. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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