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CFMBabs

New Feeding Tube

30 posts in this topic

New tube on Friday. I got the call just after lunch. Not looking forward to it since they can't sedate me and last time was pure torture. Never mind at least things are going in the right direction, I thought I may have to resort to using a garden hose to get my nutrition and pain relief in. Actually that's not a bad idea! At least the food would go in much quicker.

 

Had much fun trying to get antibiotics in all week. On the positive side, my jaw ache seems to be subsiding, although it's still painful.

 

Snow is forecast for this evening. I won't be dragging the sled from the garage, neither will I be venturing beyond the front door, except for fuel for the fire.

 

Happy times ahead????

 

Best wishes

Barbs xxx

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Hi Barbs,

 

I sorta think I'm thrilled that you're getting a new feeding tube on Friday. But, not being sedated, my goodness. That makes me shudder just thinking about it.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Barbs,

I'll be thinking of you Friday, hoping the new tube goes in swiftly and as painless as possible.

Cheryle

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Barbs,

Yes, at least things are heading in the right direction. Can't they give you something for the pain? When I read you will not be sedated I got a sick feeling throughout my body. UUGGHH

 

Good luck and hopefully it won't be too bad.

 

Big Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Hey Barb

 

I hope all goes well for you on Friday...and with any luck, somewhat pain free (I know, wishful thinking for you!)....but I do hope it all works out ok.


Sending good wishes your way!

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Barbara,

 

Will keep you in my thoughts and hope that the surgeon is gentle and speedy. Wishing there was something else for you. Do they give you a headset with at least your favorite music to listen too and maybe some guided imagery or something of the sort? Take care Barbara.

 

With gentle thoughts,

 

Judy


A happy heart is good medicine.

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Hi Barb,

 

I will think of you on Friday. I hope it all goes smoothly and easier than last time. Susie54

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Once again thanks to you guys for being so supportive.

 

Thay can't sedate me because my veins are too fine for them to get a canula in. They end up trying for ages and I end up in more pain that way. The alternative is to have one in my neck or groin but for that it's quite a major thing just for a 20 minute or so procedure.

I guess we all have a problem with blood tests and so forth, so it's part and parcel I think? I'm not looking forward to it. It's done under X Ray and the last time was quite horrific as it was being changed for a different type -- perhaps this time it may not be as bad.

 

I go to the hospital tomorrow at 9am, although I'll be there much earlier than that!

 

Take care everyone!

 

Viva new tube -- Ole

 

Barbara xxxc

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Barbara,

I am so sorry you have to go through with that. I send huge hugs your way. I hope this new tube will do the trick!

Nan

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Hi Barbara ,

 

I will keep you in my thoughts tomorrow and hope for a quick procedure for you. You would think they could give you 'laughing gas' like the dentist does.......just something to help you through it with less pain.

 

Take care, Everyone.

Margaret

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Oh Barb...

 

You are such a trooper...all you have been through!

 

I can sure see how the garden hose sounded like a great alternative for you, though!

 

Sure keeping you in my ongoing thoughts as you do whatcha gotta do, my UK friend.

 

Loving and Supportive Hugs to you from across the ocean.

Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hi Barbara,

Sorry to hear about the tube. You helped me a lot when I was deciding for the surgery.

Wish you good luck, I hope everything goes with as little pain as possible. I went to esophageal manometry test without sedation last month. This is around ¼ inch tube in diameter, but still I was in pain.


Kind regards,

 

Kamlesh

 

 

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Barbs,

Hope the installation goes smooth tomorrow! I can't believe you don't get medicated. Of course you do have that amazing ability to think happy thoughts in spite of everything.

 

Positive thoughts your way,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Well, back from the hospital with new tube in situ. I spent the whole of yesterday cooped up in a place I didn't want to be!

It was quite different to last time, although I think from a traumatic point of view it was much the same. They insisted that I be sedated which was a surprise to say the least. Problem was they had the same old problem with my veins. I was put through endless attempts, even using an ultrasound machine to locate my veins. The doctor went very deep in my arm with a huge canula and on the third and final attempt before he gave up, he managed to hit the vein and boy did it bleed. It looked like carnage in the cubicle. I was bruised from my hands to my elbows and aching with it but soon after I was wheeled into theatre and given just a little sedative. I could have sworn that I wasn't sleepy, I was totally coherent! yet I felt nothing.

I wasn't alowed to get up afterwards for a few hours -- the most relaxing sleep followed, until I woke up shivering with my feet in spasm and fingers just about to follow suit. I felt sickly but otherwise okay!

 

Today I'm using my tube although I haven't felt completely well all day -- I'm getting there though!

Thank you to everyone for your kind thoughts. I guess I'm back to my old self.

 

Love and hugs

Barbara xxxx

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Hey Barb

 

Glad to hear you made it through without feeling a thing although it took some doing to get you to that point with your veins. Hopefully, you'll feel just like your old self and that sickly feeling along with the pain in your arms will disappear by tomorrow!! :)


Sending good wishes your way!

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Barb,

 

I'm so glad you have that over with! :) There's a medication (here in the states anyway) they can give you when they are doing things like that, that causes a sort of amnesia. They give it to me when I have an endoscopy or colonoscopy. When the patients come out of the anesthetic they tend to repeat themselves and ask the same questions over and over. :D It can get really hilarious. :lol:

 

But again, I am so glad the new tube is in and you're back home by the fire. Now hopefully the antibiotic will do it's thing and help your jaw pain.

 

Warm wishes.

Christy


Love makes the world go around!

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Barb,

I am so glad that is over!!!!!!!!!! I am so sorry about the bruising, but am glad you felt nothing. I hope that you will be feeling better daily.

Nan

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Hi Barb ,

 

So glad to hear that you are doing OK. I am glad they sedated you.

 

Take care, Everyone.

Margaret

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I am so glad you are done with this and I so hope it works for you! I know what you went through to find your veins. Mine are the same way and that's why I'm so glad I had a port put in. It got to the point where they had to call in the anesthesiologist to put it in.

 

I so hope that this works for you!

 

Warm hugs,

 

Peggy

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Hi!

 

Of Course Happy times ahead!! Everyday is a challenge, but! it's a day of wonder, family, friends, and the beauty of nature!!!

TP

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I'm so glad that they've managed too get the tube changed under sedation. I had a colonoscopy a month ago and they sedated me, I felt awake while they did it but no pain then after I slept for a few hours and don't really remember what they did.

 

Take Care

 

Jensue

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