CFMBabs

New Feeding Tube

30 posts in this topic

New tube on Friday. I got the call just after lunch. Not looking forward to it since they can't sedate me and last time was pure torture. Never mind at least things are going in the right direction, I thought I may have to resort to using a garden hose to get my nutrition and pain relief in. Actually that's not a bad idea! At least the food would go in much quicker.

 

Had much fun trying to get antibiotics in all week. On the positive side, my jaw ache seems to be subsiding, although it's still painful.

 

Snow is forecast for this evening. I won't be dragging the sled from the garage, neither will I be venturing beyond the front door, except for fuel for the fire.

 

Happy times ahead????

 

Best wishes

Barbs xxx

Share this post


Link to post
Share on other sites

Hi Barbs,

 

I sorta think I'm thrilled that you're getting a new feeding tube on Friday. But, not being sedated, my goodness. That makes me shudder just thinking about it.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

Share this post


Link to post
Share on other sites

Barbs,

I'll be thinking of you Friday, hoping the new tube goes in swiftly and as painless as possible.

Cheryle

Share this post


Link to post
Share on other sites

Barbs,

Yes, at least things are heading in the right direction. Can't they give you something for the pain? When I read you will not be sedated I got a sick feeling throughout my body. UUGGHH

 

Good luck and hopefully it won't be too bad.

 

Big Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hey Barb

 

I hope all goes well for you on Friday...and with any luck, somewhat pain free (I know, wishful thinking for you!)....but I do hope it all works out ok.


Sending good wishes your way!

Share this post


Link to post
Share on other sites

Barbara,

 

Will keep you in my thoughts and hope that the surgeon is gentle and speedy. Wishing there was something else for you. Do they give you a headset with at least your favorite music to listen too and maybe some guided imagery or something of the sort? Take care Barbara.

 

With gentle thoughts,

 

Judy


A happy heart is good medicine.

Share this post


Link to post
Share on other sites

Hi Barb,

 

I will think of you on Friday. I hope it all goes smoothly and easier than last time. Susie54

Share this post


Link to post
Share on other sites

Once again thanks to you guys for being so supportive.

 

Thay can't sedate me because my veins are too fine for them to get a canula in. They end up trying for ages and I end up in more pain that way. The alternative is to have one in my neck or groin but for that it's quite a major thing just for a 20 minute or so procedure.

I guess we all have a problem with blood tests and so forth, so it's part and parcel I think? I'm not looking forward to it. It's done under X Ray and the last time was quite horrific as it was being changed for a different type -- perhaps this time it may not be as bad.

 

I go to the hospital tomorrow at 9am, although I'll be there much earlier than that!

 

Take care everyone!

 

Viva new tube -- Ole

 

Barbara xxxc

Share this post


Link to post
Share on other sites

Barbara,

I am so sorry you have to go through with that. I send huge hugs your way. I hope this new tube will do the trick!

Nan

Share this post


Link to post
Share on other sites

Hi Barbara ,

 

I will keep you in my thoughts tomorrow and hope for a quick procedure for you. You would think they could give you 'laughing gas' like the dentist does.......just something to help you through it with less pain.

 

Take care, Everyone.

Margaret

Share this post


Link to post
Share on other sites

Oh Barb...

 

You are such a trooper...all you have been through!

 

I can sure see how the garden hose sounded like a great alternative for you, though!

 

Sure keeping you in my ongoing thoughts as you do whatcha gotta do, my UK friend.

 

Loving and Supportive Hugs to you from across the ocean.

Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Barbara,

Sorry to hear about the tube. You helped me a lot when I was deciding for the surgery.

Wish you good luck, I hope everything goes with as little pain as possible. I went to esophageal manometry test without sedation last month. This is around ¼ inch tube in diameter, but still I was in pain.


Kind regards,

 

Kamlesh

 

 

Share this post


Link to post
Share on other sites

Barbs,

Hope the installation goes smooth tomorrow! I can't believe you don't get medicated. Of course you do have that amazing ability to think happy thoughts in spite of everything.

 

Positive thoughts your way,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now