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CFMBabs

New Feeding Tube

30 posts in this topic

I'm so, so sorry to read o the problems you had with getting your veins "invaded" Can't they put a "deal" in so they don't have to do this continuously? What I mean is, if they need to get into a vein, can't they put a "port" or something in so they don't have to trouble your veins?

 

Just hope they can make it easier for you, my friend.

 

Hugs,

Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Barb,

 

So glad you are back from the ordeal you had to endure and back to your old self.

 

With gentle thoughts,

 

Judy


A happy heart is good medicine.

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Hi Barbs,

 

I'm glad you have your new feeding tube and are back home recovering now. How often, in general, do feeding tubes need to be replaced?


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hey there Barbs,

 

Well I am glad you were sedated after all! But sorry it was such an ordeal getting you to that point. Don't you just love that wonderful deep sleep? After my laporoscopy for endometriosis, I was so mad that they woke me up and made me go home! :lol:

 

Stay warm!

Love and hugs to you,


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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I'm much better now! Thanks for all your posts.

 

Feeding tubes last roughly 12-- 18 months -- mine was almost 2 years old. I guess it's my fault for not complaining that it was getting more difficult to use and since they hate my veins, they try and leave it as long as possible!

 

I may inquire at my next rheumatology appointment (19th December) about a port. If my tube needs to be changed more regularly then this may be an answer! Although by what the doctor said, it's only a last resort and unnecessary if I'm not on regular medication, so I don't know what to think actually?

 

Sometimes I think the probing for veins bit is worse than the actual procedure. It took over an hour, several different people and finally a sonographer to get my cannula in, surely the expense of a port would be far cheaper than the services of many staff for little old me!

 

Best wishes as always.

 

Hugs

Barbs xxx

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