CFMBabs

New Feeding Tube

30 posts in this topic

Well, back from the hospital with new tube in situ. I spent the whole of yesterday cooped up in a place I didn't want to be!

It was quite different to last time, although I think from a traumatic point of view it was much the same. They insisted that I be sedated which was a surprise to say the least. Problem was they had the same old problem with my veins. I was put through endless attempts, even using an ultrasound machine to locate my veins. The doctor went very deep in my arm with a huge canula and on the third and final attempt before he gave up, he managed to hit the vein and boy did it bleed. It looked like carnage in the cubicle. I was bruised from my hands to my elbows and aching with it but soon after I was wheeled into theatre and given just a little sedative. I could have sworn that I wasn't sleepy, I was totally coherent! yet I felt nothing.

I wasn't alowed to get up afterwards for a few hours -- the most relaxing sleep followed, until I woke up shivering with my feet in spasm and fingers just about to follow suit. I felt sickly but otherwise okay!

 

Today I'm using my tube although I haven't felt completely well all day -- I'm getting there though!

Thank you to everyone for your kind thoughts. I guess I'm back to my old self.

 

Love and hugs

Barbara xxxx

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Hey Barb

 

Glad to hear you made it through without feeling a thing although it took some doing to get you to that point with your veins. Hopefully, you'll feel just like your old self and that sickly feeling along with the pain in your arms will disappear by tomorrow!! :)


Sending good wishes your way!

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Barb,

 

I'm so glad you have that over with! :) There's a medication (here in the states anyway) they can give you when they are doing things like that, that causes a sort of amnesia. They give it to me when I have an endoscopy or colonoscopy. When the patients come out of the anesthetic they tend to repeat themselves and ask the same questions over and over. :D It can get really hilarious. :lol:

 

But again, I am so glad the new tube is in and you're back home by the fire. Now hopefully the antibiotic will do it's thing and help your jaw pain.

 

Warm wishes.

Christy


Love makes the world go around!

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Barb,

I am so glad that is over!!!!!!!!!! I am so sorry about the bruising, but am glad you felt nothing. I hope that you will be feeling better daily.

Nan

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Hi Barb ,

 

So glad to hear that you are doing OK. I am glad they sedated you.

 

Take care, Everyone.

Margaret

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I am so glad you are done with this and I so hope it works for you! I know what you went through to find your veins. Mine are the same way and that's why I'm so glad I had a port put in. It got to the point where they had to call in the anesthesiologist to put it in.

 

I so hope that this works for you!

 

Warm hugs,

 

Peggy

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Hi!

 

Of Course Happy times ahead!! Everyday is a challenge, but! it's a day of wonder, family, friends, and the beauty of nature!!!

TP

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I'm so glad that they've managed too get the tube changed under sedation. I had a colonoscopy a month ago and they sedated me, I felt awake while they did it but no pain then after I slept for a few hours and don't really remember what they did.

 

Take Care

 

Jensue

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I'm so, so sorry to read o the problems you had with getting your veins "invaded" Can't they put a "deal" in so they don't have to do this continuously? What I mean is, if they need to get into a vein, can't they put a "port" or something in so they don't have to trouble your veins?

 

Just hope they can make it easier for you, my friend.

 

Hugs,

Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Barb,

 

So glad you are back from the ordeal you had to endure and back to your old self.

 

With gentle thoughts,

 

Judy


A happy heart is good medicine.

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Hi Barbs,

 

I'm glad you have your new feeding tube and are back home recovering now. How often, in general, do feeding tubes need to be replaced?


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hey there Barbs,

 

Well I am glad you were sedated after all! But sorry it was such an ordeal getting you to that point. Don't you just love that wonderful deep sleep? After my laporoscopy for endometriosis, I was so mad that they woke me up and made me go home! :lol:

 

Stay warm!

Love and hugs to you,


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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I'm much better now! Thanks for all your posts.

 

Feeding tubes last roughly 12-- 18 months -- mine was almost 2 years old. I guess it's my fault for not complaining that it was getting more difficult to use and since they hate my veins, they try and leave it as long as possible!

 

I may inquire at my next rheumatology appointment (19th December) about a port. If my tube needs to be changed more regularly then this may be an answer! Although by what the doctor said, it's only a last resort and unnecessary if I'm not on regular medication, so I don't know what to think actually?

 

Sometimes I think the probing for veins bit is worse than the actual procedure. It took over an hour, several different people and finally a sonographer to get my cannula in, surely the expense of a port would be far cheaper than the services of many staff for little old me!

 

Best wishes as always.

 

Hugs

Barbs xxx

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