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LisaBulman

What a week!

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On Monday I was back at the ENT for another visit. You see about a month ago I had a blocked saliva duct under my tongue on the right side. Well I let it go because it was draining on it's own for a few weeks. Well the time came where it was so big, it was painful and I could barely put my tongue down. I called for an appointment but couldn't get in for over a week. I took drastic measures (do not try this at home) and popped it myself with a pin. It drained and I had relief for a day then it filled back up again. I went to the ENT and she removed a HUGE piece of tissue from under my tongue. There was a hole the size of a grape! I was pretty fascinated with it until the novacaine wore off and I was in extreme pain! This worked great. For two weeks my saliva ducts worked great and the saliva floooowed. Last Wednesday it was back!!! Are you kidding me?! On Monday I went to the ENT. She again cut out a piece (not as big) and stitched the area open with four stitches. Have you ever had stitches under your tongue? Very uncomfortable. I go back on Monday for a recheck.

 

At 12:45 today I get a call from the school nurse. She proceeded to tell me Grace hurt herself in gym. She slipped and her leg went under the bleachers and she had a bad gash on her leg that really needed to be looked at. I went to the school, called the doctors and was told to come right in. I pay my $20 copay and they take us back to a "surgical room". We had never visited this room before. She takes off the bandage from the nurse and oh boy.... She had a wound about 1/2 inch wide and long. The skin was gone and you could see the tissue inside her leg!!! UUUGGHHH..It was gross!!! Mind you it was on her shin. 5 stitches later we were on our way home. She was so brave. Now I am exhausted and ready for bed.

 

This stuff just drains me!

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Hi Lisa ,

 

Your mouth issues sound sooooooooooooo painful!!! Is that sclero related.......blocked saliva ducts? I will keep you in my thoughts.

 

Take care, Everyone.

Margaret

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Hi Lisa,

 

Oh my goodness!! I'm so sorry that you have so much to cope with. I sure hope your saliva duct is under control now; I've had horrible problems with parotid glands and it is extremely painful. Not good stuff. I really hope it is done now!

 

Please give Grace an extra warm hug from me. You both need some real TLC now...do I see you all plopped in a heap, watching some good movies? I sure hope so...you need a rest!!


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Lisa,

 

So sorry you and your daughter have gone through some painful times. Hope you are on the road to recovery. Stay away from home surgical treatments. It reminds me of a Nurse I know. Take care.

 

With gentle thoughts,

 

Judy


A happy heart is good medicine.

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Lisa, Lisa, Lisa!

You did not need this! It must have been painful to take a pin to it yourself. Bravery or desperation? Please take some time for yourself. You've had a very rough year and you deserve some me time on a warm beach with someone else at your beckon call.

 

Once again, Grace just shows how much of her mother she has in her.

 

Big, big hugs to you both,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Lisa,

 

This is the last thing you needed. What awful pain you went under for your tongue.And I am so glad your daughter came out ok. SO REST NOW!! And tell everyone around to take it easy and stay well for the holidays. They are enough to handle without anything else. Take care. Susie54

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Oh man Lisa, I can only imagine.....!!! How do you eat? What do you eat?

 

I am so sorry about Grace! OUCH! Sounds like she is a trooper though. I had my oldest into ER lastnight. He unjured his neck at basketball practice. All is ok - just a sprain. Kids! AGH!

 

Hang in there!


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Lisa,

You must have Sjogren's too! I can't imagine the pain you are in.. I hate when anything is wrong with my mouth. Your poor child!!!!!!!!!!!! It is exhausting to have a day like that. I don't think people understand what days like this do to our bodies. Please take care of yourself and your precious child.

Hugs to you!

Nan

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Lisa, wow that had to be awful, I hope it doesn't come back again. I have never heard of such a thing. I am glad your daughter wasn't hurt more than she was. I remember doing that too when I was in school. That hurt.. Well take care and keep us updated. sam


Sam

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Hey Lisa~~~~

 

Wow...Ouch...wow :blink: !!!

 

Why stop at Chicago on your way to New York?! You poor things!

 

I hope that all you've been through is now going to heal and work without any more need to visit the doctor on this, Lis.

 

OUCH...the shinbone...ouch! And stitiches too...ouch! :o

 

Take care of yourselves and each other, K?

 

Loving Hugs,

Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Was starting to recover or feel somewhat normal when....

 

My brother called to say my sis in law was having contractions (only 30 weeks right now) and they were off to the hospital. He asked if I could get my niece for them. She is 2 and a doll. So needless to say I had an extra for a sleepover last night. Good news, no labor. Bad news, bed rest. So I have this little one most of the day. :) Good thing she keeps herself occupied.

 

I need a vacation!

 

Hugs,

Lisa

 

PS Janey...pure desperation!!


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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It sounds like absolute misery, but I am glad things are working out. I hope Grace is feeling better, too. As for spending the night with an extra family member, it all sounds very exciting (if not exhausting). I love the way your extended family rallies round for one another in times of need. You are very lucky and so are they to have you.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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I just wanted to send a short note and say that I hope your stitches aren't as bothersome anymore and that you are on your way to healing. Your experience sounds terrible and I can't imagine going through that.

 

I hope your life calms down for you and that you are able to get some rest. I'm thinking of you.

 

Warm hugs,

 

Peggy

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