Jeannie McClelland

Thinking about how to stay warm

16 posts in this topic

It just occurred to me that one helpful tip that I haven't seen mentioned was changing your socks/gloves, whatever, whenever there is a chance they might have gotten damp. I always thought my feet didn't sweat, but since Monsieur Raynaud came to live with me :D , I've found out that changing my socks frequently keeps my feet warmer.

 

Another thing - there's these wonderful disks that you put in the microwave. I usually have one under my feet in cold weather. They look like Frisbees, pretty much the same size, and were meant for pets. They hold the heat for hours!

 

Don't know why keeping my feet warm helps so much to keep the hands warm, but it does.

 

JJ

 

A cup of hot chocolate and cinnamon toast cures most ills~


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Hi Jeanne!

 

I started changing my socks 2 or 3 times a day quite awhile ago. My feet sweat alot. Even before Raynaud's. The disk is new to me and sounds great! Am I right in assuming that you bought yours at a pet store? Are they very expensive? My feet have been cramping and I've found that heat helps relax them. The disk would wonderful.

 

Thanks,

Christy


Love makes the world go around!

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You sure got my attention with the microwaveable pet warmer. I googled it and found it at numerous on-line stores, and our local pet supply store also has it. Going to get one today!

 

One of the sites I found it on had an interesting collection of battery and electrical heat devices for winter comfort.

 

Thanks.

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Hello Jeannie

 

Yeah what's with the sweaty feet?

 

Not that my feet sweat you understand, I's a lady, they just glisten enough to require sock changes throughout the day. I won't say how many times as I is a lady and a lady never tells.

 

Purr I was suffering foot cramp something chronic, at one point it was in all toes on both feet! The scleroderma nurse told me it was being caused by the Raynaud's. I had been strapping toes together in a desperate bid to keep them still to no avail. Now I just warm them up and the cramp goes. I had no idea Raynaud's caused cramp and I now do the same when I get cramp in my hand by putting gloves on and within a few minutes it goes. She also said vitamin e in high doses would help the cramp.

 

Excellent point to make Jeannie! :)

 

Take care.

 

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

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(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Jeannie,

 

Don't think I have said hello yet and welcome so hello and welcome. Thank you for the frisbee like tip I'll check it out. I use the chemical hand or feet warmers but they sometimes get too hot.

 

With gentle thoughts,

 

Judy


A happy heart is good medicine.

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I find I get a lot of cramp in my feet but did not realise it was the Raynaud's causing it. I will give the VItimin E a try because my toes keep going into spasms when I change my socks or shoes & it is so painful!

 

Thanks for the tip Amanda.

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Hi JJ ,

 

If I don't eat a banana in the late afternoon, I have to use an OTC Potassium supplement to prevent cramps at night in my ankles, toes or shins. It's one or the other daily for me or else I have a very long night!!! You may need to talk to your primary care physician to see if that would interact with your other meds.

 

Take care, Everyone.

Margaret

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Dear Jensue,

I'm sorry you are having foot cramps. I know how pesky they can be!

As it happens, quite surprisingly, Vitamin E has been found to be an ineffective treatment for Raynaud's, even though it has been touted for it, for years. See Raynaud's: Ineffective Treatments:

Thus, as always, we ask everyone to consult doctors for all medical advice, including things mentioned in this forum, bearing in mind that even "good" or seemingly "harmless" things like vitamins can be detrimental in the wrong dosages. Plus, medical information changes so quickly as new and often very surprising results are revealed literally every single day!

Vitamin E has indeed been found to be helpful for leg cramps in some medical studies. But you would, of course, need to consult your doctor for both the symptom and the potential treatments, including the proper dosage, and warnings, for any/all proposed treatments, so that you can make a completely informed decision on risks and benefits.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Whooee! This got some really interesting responses.

I didn't even think it could be Raynaud's causing my foot cramps! Hey Amanda, thanks for mentioning that.

Margaret, my hubby rides his bike to work (except on days like today when it hasn't even made it to 0 F yet and there's maybe 4 inches of snow on the ground~), and he eats a banana a day to ward off leg cramps and to prevent gout attacks. If he skips more than a day or two, that ol' big toe turns bright red and starts throbbing...

Vitamin E - funny thing about that one. In the UK they used to sell capsules called ACE (guess what's in them) every winter. Every skin cream bragged about its Vit. E content too. Now we know that too much Vitamin A and Vitamin E really aren't good for you~ My one doctor told me to clear out all the supplements from the medicine cabinet and just make sure I was eating properly. The only thing she didn't fuss about was a plain multivitamin.

Hmmm, wonder what she'd think about my favorite winter meal of hot chocolate (with whipped cream, of course) and mountains of hot, buttery cinnamon toast?


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Interesting topic. I have been having more frequent foot cramps myself. I also have been trying to find gloves that will keep my hands warm. Those are hard to find in Florida, but we have had some unusually cold days so far. I usually need to wear gloves while I'm out and I'm usually driving then so I don't know if the discs would work in that case.


I may have Scleroderma, but Scleroderma doesn't have me!

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<<he eats a banana a day to ward off leg cramps and to prevent gout attacks. If he skips more than a day or two, that ol' big toe turns bright red and starts throbbing...>>

 

Jeannie,

 

Tell him to ask his doctor about eating a few servings of cherries every day. They are suppose to ward off gout attacks, too. They can be fresh, canned, or dried cherries.

 

Take care, Everyone.

Margaret

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Thanks Shelley for those links, I think when I see my general practitioner next I will mention it to him and see what he suggests.

Smac, I use liner gloves in my sheepskin mittens. I think some of the secret is to warm any glove first before putting them on. When driving I do prefer to wear a leather glove so have a pair which have cashmere linings (I always buy them in the sales because they are quite expensive).

Jensue

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Thanks for the cherry tip, Margaret. I think he gets tired of bananas all the time. I'll let him know.

 

Jeannie


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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get a pair of fur lined boots and wear them with fuzzy socks. it's been a boon for me especially since I walk to work in the morning in 12 degree weather. brrr!

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To keep my body warmer I always wear a scarf, even inside the house! At first I forgot to take it off so when I did hours later, I realized how cold I got and fast. So now I always have one on.

 

Hugs,

Lisa

 

Now if I could just keep my hands warm....


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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