georgette

Tendon Shrinkage

9 posts in this topic

Hi everyone,

 

I wanted to ask you all if my response to my physiotherapy session is normal. I have very little use of my left hand and my right hand /fingers are curling so bad I can neither straighten my fingers or make a fist so I went to a physiotherapist to try save my right hand from any more curling. He stretched my tendons, he pulled and pulled on my fingers. The pain was quite bad. He worked on the tendons right up to my elbow. Now today, the day after, my whole right arm/hand/fingers are wretched with pain and my fingers are so swollen like little fat sausages. They are so fat and throbbing and hot, I am having trouble moving them. Is this normal? Will this swelling go down? I don't know what to think here, as my fingers and fist are definitely worse than before I had this treatment. Should I continue with this treatment or is swelling and pain a normal response to tendon stretching? I look forward to reading about anyone else's experience with tendon stretching.

 

Hugs,

georgette

Share this post


Link to post
Share on other sites

Oh Georgette,

 

I am so sorry Love - it sounds miserable. I would think with all of that work on your hands and arm, that it would be normal to hurt that much. My thought however is that he may have worked it too hard. In upcoming appointments I would probably ask him to take it a bit easier. The saying of "no pain no gain" is silly.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hello Georgette

 

I use a sports physio who is a personal friend and after she's done my calves they are bruised and if she does my shoulders they are tender for days so much so that I need pain relief BUT she warns me first. I know exactly when it's going to hurt during and after.

 

I think the after effects could be normal but your guy should have told you what to expect and should communicate with you whilst doing the physio. Having said that there's no way of getting around the fact that physio is painful during and after.

 

Hope this helps. :(

 

Amanda


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Georgette,

 

Sorry you are going through so much. Can you call the person who treated you and ask him if what happened was a normal reaction? The tendons in my wrists get pretty tight and painful and I stretch them my self but I do stop when it gets too painful. The rheumatologist did a similar thing at one of my appointments. My feet were very swollen and she said it was from the scleroderma. She worked on my feet for awhile like she was kneading bread and it hurt so much I felt sick. She mentioned something about the tissue adhering to other parts of my foot. A little while later the pain subsided but the swelling did go down for awhile and then came back in a few days. Have not read anywhere about treatment options for many of the problems we have that crop up. It sounds like PT and doctors just wing it sometimes. Georgette I hope you feel better soon.

 

With gentle thoughts,

 

Judy


A happy heart is good medicine.

Share this post


Link to post
Share on other sites

Hi Georgette , I see the specialist rheumatology physio at the hospital for hand exercises. He doesn't work on the fingers himself, but has me go through exercise/stretches under supervision. My fingers and wrists always hurt for a few days after, so think is probably a normal reaction He has impressed on me though that you need to be careful and not to overstretch if have SSc as can easily do damage. Is your physio experienced with SSc patients?

 

Lizzie

Share this post


Link to post
Share on other sites

Hi Georgette, Both my hands were swollen, tight and curling in, the right hand was worse than the left and they were very painful when manipulated. I went to an occupational therapist who firstly did paraffin wax treatment on both hands, then she massaged my hands, then she did bending and straightening of all fingers and wrists. She told me to tell her if it was too painful so she could stop. I felt that was beneficial I also had night splints to wear which I confess I was not good about wearing. She also gave me some exercises and putty which I could work with at home. After having cyclophosphamide and stem cell treatment they are getting straighter and less swollen as the skin is less taught. I still will continue to work with the occupational therapist. I would tell your therapist that you cannot tolerate the same treatment he gave you which caused you problems, let him know exactly what you are feeling. Sincerest regards Sharon

Share this post


Link to post
Share on other sites

Thank you everyone for sharing your experiences with me. Lizzie, no, the physical therapist had never heard of scleroderma, but did say that after seeing my hands he was going to research it more for future patients. He did say to me before he stretched my fingers that it would hurt so I knew all that but it is the after effects that have me worried. It's 2 days now since the treatment and my fingers are still very swollen and I feel very bruised right up to my elbow. And now since I awakened this morning I have tingling in my fingers. I'm wondering if the swelling in the wrist area is putting pressure on the nerves to the fingers. I think he has actually inflamed the tendons at least that's how it feels. I can't rest them either as I have near no use of the left hand so I have no choice but to use this right hand so resting it completely is not possible but I will try to use it as least as possible. Thanks again for sharing your experiences. I will wait until Monday and ring to tell him what is going on. Thank you.

 

Hugs,

georgette

Share this post


Link to post
Share on other sites

Hi Georgette,

Here is my situation, Both of my hands areswollen tight and curling in. My doctor is a sclero expert and she has me going twice a week to an occupational therapist (I also go to a Physio Therapist but he does the rest of my body). She has written my OT a note to be very aggressive who firstly does parrafin wax treatment on both hands to warm them up, then she bends closed and straightens all my fingers and wrists. I have tears it hurts so much but she does flatten them and close them. My doctor said that this needs to be done so when the Sclero stops being active my fingers will still be able to move - so the benefit is really not for now it is more for when the Sclero burns it's self out. I have been doing this for 2 years and I must say that my fingers only hurt for about an hour after I am finished.


Lucy

Diffused Scleroderma

Diagnosed Dec/06

First Sympton Nov/05

Share this post


Link to post
Share on other sites

Hi Lucy,

 

What you described is exactly what my physical therapist did to my hands but they are still swollen and very hard to use and its day four. I rang him today but he was not in, so I rang my doctor and told him and he said that it sounded as though the tendons have become inflamed and to splint the hand to rest it and take some naprosen, and if it was no better then I had to go see the doctor. So at the moment it is a waiting game to see how it all turns out by the end of the week .

 

Hugs,

georgette

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now