Margaret

Pneumonia again

40 posts in this topic

Hi Margaret,

 

Sorry Gareth has been so sick and am glad to hear he is doing better. Before anyone tried to diagnose my problems I was sick all the time. I always had a low grade temp. A cold would turn into acute bronchitis and a 1 time pneumonia. Flu would last all winter even with the flu shot. The GI bugs would be torment and all my labs would be normal except for a few scattered no big things. I had walking pneumonia and looked as healthy as could be. Once in awhile even now things become exacerated like the pneumonia shot last month turned into a very nasty cellulitis (skin infection) but 5 years ago with the 1st pneumonia shot nothing happened. This winter so far I have had the office cold and GI bug which I just got over last week but actually did better than most in rebounding. Got my hand sanitizer out before it gets me again. I use the hand sanitizer when I go shopping too and wash the cart handle with it if there are no wipes in the store. These bugs started early this year and caught me or I was slow this year.

 

As far as lung fibrosis I believe aspirations can cause lung fibrosis but have no idea what the difference is on x-rays. Take care Margaret and you are really a good mother and kind person.

 

With gentle thoughts,

 

Judy


A happy heart is good medicine.

Share this post


Link to post
Share on other sites

Good morning to Everyone ,

 

Gareth finished up his Levaquin on Monday for the pneumo in his LLL and, by Thurs night, was complaining of pain in his RLL side. I figured it was from his stomach because he had 2 cans of pop throughout the day for holiday and I/he knows that he can't handle it and gets very gaseous from it. Well, he woke up Fri morning in a lot of pain, so off to the doctor's again. An X-ray showed "infiltates in both LL areas of the lungs consistent with pneumonia"!!! So the doctor gave him a shot of antibiotics there and sent him home with Z-pak. How in the world he went from pneumo in LLL to pneumo in both LLs, while on the Levaquin, is over my head!!!

 

Also, since this wasn't his normal primary care physician, I asked this doctor how they tell pul. fibrosis from pneumo infiltration on X-rays? He said that in the beginning they both look the same.....why? So, I explained about his UCTD and how he goes straight into 'pneumo' without having a cold, cough, flu, etc. Well, that sure got his attention!!! He is setting Gareth up with a Pul Spec to review all his X-rays from the past 2 years and see if something else isn't going on to cause these pneumonias. I know that his usual primary care physician would have done the same, but he won't be back till next week.

 

Happy Holidays to Everyone.

Margaret

Share this post


Link to post
Share on other sites

Margaret,

So sorry to hear that Gareth is having so many problems but so glad that you got a Dr. that is going to do more to find out what is going on. My thoughts are with you and Gareth. Keep us updated as to how he is doing.

Gigi


Gigi08

Share this post


Link to post
Share on other sites

Margaret,

You two just can't catch a break! Not that I want you either of you to actually break anything! :blink:

 

Hopefully a specialist will be able to sort this out and you can get more in depth answers to what is going on. Please keep us posted. I am very interested to hear what the specialist has to say. Try to relax and have a happy and HEALTHY New Year.

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Everyone,

 

For those of you who believe, I sure would appreciate it if you kept Gareth in your thoughts. Just got home to grab some clothes, etc. Gareth spent the day in the ER with severe pain on the left side. Seems the pneumonia has gotten worse on that side and they *think* he has pleuritis (sp) on that side. He's been admitted for stronger IV antibiotics. I'm heading back --- I always stay with him in the hospital.

 

Thanks,

Margaret

Share this post


Link to post
Share on other sites

Margaret,

 

So sorry to hear that Gareth is ill again and so glad a specialist will be checking those x-rays. Will keep you both in my thoughts and hope with you for intervention and a speedy recovery for Gareth. Take care Margaret.

 

With gentle thoughts,

 

Judy


A happy heart is good medicine.

Share this post


Link to post
Share on other sites

Margaret,

 

I am also so sorry that Gareth's pneumonia has gotten worse. I'm sending best wishes his way. When you can, let us know how he is doing.

 

Sherion

Share this post


Link to post
Share on other sites

Hi Everyone,

 

Please continue to keep Gareth in your thoughts. He was airlifted from our little hospital to Hershey Med Center last night due to suspected blood clots in his lungs, worsening pneumonia, and fluid buildup. Today, they took off over 650 cc's from the left lung. They could easily have gone up to 1000 cc's but he started to jerk around too much. Tomorrow he will have more testing done. He is 'out of the woods' now and sleeping quietly. They are trying to rule out all sorts of 'why this happened' ....hopefully, tomorrow will give us some answers.

 

Thank you,

Margaret

Share this post


Link to post
Share on other sites

Margaret,

 

I am so sorry to hear that Gareth's health took a bad turn. Just know that we are all pulling for him (and you). Sending best wishes for better health.

 

Sherion

Share this post


Link to post
Share on other sites

Margaret, I'm so sorry to hear about Gareth. He is in my thoughts as you are too. Keep us updated as to how he's doing.

Gigi


Gigi08

Share this post


Link to post
Share on other sites

Dear Margaret and Gareth,

 

Oh, I am so, so sorry to read that Gareth and you are going through such a difficult time.

 

Please know that all of us will keep him ...and you in our special thoughts to help him heal and conquer this pneumonia.

 

You are both so very special to us and his wellness is paramount, of course.

 

With soft special Loving Hugs,

 

Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Margaret,

 

I am sorry that Gareth is having so much problems. Hopefully he will get better quick. You and your family are in my thoughts. Please give Gareth lots of hugs!,

 

Hugs,

Nina Lynn

Share this post


Link to post
Share on other sites

Hi Everyone,

 

Another day at the hospital....hurry up and wait and, then, go no where!!! A resident made the mistake of telling Gareth that he would probably be going home today after his X-ray. Well, the X-ray wasn't good. It looks just as bad as before they took off all that fluid 2 days ago. So, then, we waited for a heart echo to r/o pulmonary hypertension and another CT scan to check for the amt of fluid and other possible blood clots. They are leaning towards everything being sclero/UCTD related. Of course, we won't get the results of todays test till tomorrow. To say the least, I am scared. This came out of no where....he was doing so well on the Plaquenil. Please continue to keep him in your thoughts.

 

Take care, Everyone.

Margaret

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now