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I'm pregnant!

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Okay, this is a long story. I'm 29 and have NOT been diagnosed with anything. I have a low positive scl-70, 3 face telangiectasias and carpal tunnel, that's it. Oh, I also have thyroid antibodies but thyroid function (TSH) is and has always been normal.


I do have a family history of lupus, Sjogren's, Hashimoto's, you name it. I have done all kinds of tests and 3 rheumatologists have told me I don't have sclero and won't necessarily develop the disease (I don't buy that but oh well). I DON'T have Raynaud's, skin tightening or any organ involvement (yet?).


I have been extremely depressed thinking about what will happen (and when) and regretting to be so young to go through this. Basically, unable to function or enjoy life.


In the middle of all this, I had to have surgery to treat severe endometriosis. It turns out I was 1-2 weeks pregnant when they did the surgery!! My doctors have told me that most likely this did not affect the baby. They did a pregnancy test that came back negative at the time...go figure.


As much as we want to start a family, I am very scared about what is to come for me and for this baby. On the other hand I am very excited about the idea of having a baby, especially after being told my chances of conceiving were slim due to the severe endometriosis. I just hope it's healthy.


I wanted to share the news with you all, I will keep you posted. I have a referral to go see a high risk pregnancy doctor, I will call next week to make an appointment.


So far I feel great, besides the morning sickness I have a lot of energy and feel fine overall.


I'm sure this is an unique case :D but has anyone gone through anything similar? Probably not!!!


I am 10 weeks now and the ultrasound looks good. :)




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Dear Ana,


Congratulations on your pregnancy! Since you don't have any major organ involvement, and you've made it this far even despite the surgery, I'd think you'll most likely have a perfectly normal pregnancy.


They say the only real difference between fear and excitement is a smile. So I'd suggest one great big smile for your impending motherhood! And so many things to do to get ready for the baby! When you deliver we'll throw a Virtual Baby Shower, full of entirely useless gifts but with tons of best wishes and happy thoughts.


You can kiss the dread goodbye, as you have more important things to tend to now. And you can deal with any health developments that may arise, down the road. You will notice them less, and mothers around here will attest, because your focus will be more on watching your little one grow and develop every day. Plus you've got us and your family for support, so you can make it through anything life tosses at you. Like a bouncing bundle of joy....whooopee!!

Warm Hugs,


Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099


The most important thing in the world to know about scleroderma is sclero.org.

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Hi Ana


Wow, go figure is right? This is only my opinion but I think that since 3 rheumatologist's have all given you the same diagnosis in that you do not have scleroderma and may not ever develop it...then you should try to place your trust there and try not dwell on what might or might not happen in the future as far as that can go. Try to remember that every person is different and affected differently by many types of diseases. I know it's very difficult to do because I have been there too, but in time, hopefully you can do that for yourself. Are any of those doctors sclero specialists? Try to remember that they also say you can have the bloodwork but that you also need a couple of the symptoms to be diagnosed with sclero...doesn't sound like you do yet, which is also really good for you. I hope that everything works out for you and that you can soon look forward and enjoy your new future with a healthy, happy baby too....congratulations!! Glad you are going to keep us posted as well.

Sending good wishes your way!

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Hi Ana,


I too had surgery for my endometriosis because I was having trouble conceiving. My pregnancy test before the surgery was negative and at my post surgery check up, I was pregnant! :D doctor gave me a little scolding (with a smile on his face) because I disobeyed his orders....4 days after the surgery I felt great so.... :P


Congratulations!!! This is meant to be for you. Sorry about the morning sickness. I had it with my first but not my second. Sounds like you will be in good hands with a high risk specialist. So relax and enjoy! I am happy for you!

Take care,



Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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:lol: Ana :lol:


I am soooooooo happy this has finally happened for you! Answers come and here's yours! I did ask for lots o babies so beware!


You and your husband can build a beautiful family now, a great foundation of two people in love and committed can do anything, even change that nappy, you know the one with the green stuff in it.


Hey do you think you'll get any weird pregnancy stuff like smells you must have (one lady sniffed rubber gloves) or must not have (my sister could not stand the smell of the grill after use, walked through kitchen, smelled it, ran upstairs to puke but tripped on last step and barffed on landing) or weird cravings?Please tell us it all so we can be virtual aunties :lol:


Enjoy every moment of it and I am so happy for you both. :) :)


Love Amanda

Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Congratulations on your pregnancy! You never know when these little blessings are going to happen so when they do, embrace them and enjoy. Just be very aware of how you feel and stay close to your doctors. Things will be just fine.


Enjoy the experience and best wishes for many joyous years to come.


Big Hugs,

Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Since you fear what the future holds, just know that you can pour all your love onto this baby and no matter what happens, 10 years down the road, or 30 years... that child will know in its' deepest parts that it was loved to the fullest. There is no greater gift you can give. Enjoy your unexpected blessing! Many mothers have challenges to face, and we face them with happiness since we are finally holding a child in our hearts! Lyn

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I heard a phrase recently and I think it could apply.


"Be Confident, but not recklessly Confident"


Remember - be confident. Embrace the pregnancy and your family with love and optimism, but (like you are) seek high risk care and follow expert advice.


It's exciting to move ahead with life, and not worry about numbers that show up in your blood-work and the unknown.


Lucky you. -RTS

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