Margaret

Blood work is negative

6 posts in this topic

Hi Everyone,

 

I just wanted to fill you in on an e-mail from Gareth's Rheumatologist. It seems that all his blood work for his Sclero flare has come back negative......ANA, Scl-70, ACA.....everything!!! She says that sclero did not cause the pleural effusion. They didn't do the Anti-RNA Polymerase test....don't know why....but his ANA has always been positive. I know that some of you in the past have said that you have symptoms of sclero but negative ANA, etc. Anyways, I am totally lost now!!! Gareth is doing so much better and that is all that matters. She wants him to remain on the Plaquenil.....it's working, she said. Hopefully, he will have a good year ahead of him now!!!

 

Take care, everyone, and thank you for all the kind thoughts.

Margaret

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Hi Margaret,

 

I'm glad he is feeling better now, that's the bottom line. But I think most people here will say that there is little or no relationship in regard to most of the blood work as far as flares are concerned (okay, and bladda bladda, I have no medical training at all, verify everything I say with a reliable source, etc.).

 

The only "score" that means anything to me when I'm feeling flared is Sed rate...and since I already know I'm not feeling well, what's even the point in that? What matters is that they stay on top of the symptoms. And at least the plaquenil is working!

 

Give extra hugs to Gareth for me.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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<<The only "score" that means anything to me when I'm feeling flared is Sed rate...and since I already know I'm not feeling well, what's even the point in that?>>

 

Hi Shelley ,

 

Yes, Gareth's sed rate was high while in the hospital. They said it was from the pneumonia.

 

<<(okay, and bladda bladda, I have no medical training at all, verify everything I say with a reliable source, etc.)>>

 

Thanks for the chuckle!!!

Margaret

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Hi Margaret

 

I'm so glad Gareth is finally feeling better and will continue to keep him in my thoughts that he will have a great year ahead of him now just like she is hoping for.

 

As far as the bloodwork goes, I have to admit that I'm with Shelley on that one. My rheumatologist nodded her head and told me that once it shows, it shows....I believe she was getting at the fact that whether it hides again after that, it won't make a difference because it was already there....but you're always on top of his symptoms and that's the best place to be for him. I'm happy for you both!


Sending good wishes your way!

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Whew, good news Gareth is doing better. How about you, Mom? Deep breath and maybe a little feet-up time?

 

I'm with Shelley on the seeming lack of correlation of blood work to how I feel. My ANA's have been all over the place, up, down, in between~ I had a rheumatologist tell me they didn't matter, so who knows. Negative on most other things they use as diagnostics; C-reactive proteins seem to agree with how I feel, mostly.

 

Fingers crossed for Gareth!

 

Jeannie


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Margaret,

 

This is wonderful news and glad Gareth is doing better. The lab work will drive you nuts so don't get overly involved with it especially when someone has an autoimmune disease. Take care.

 

With gentle thoughts,

 

Judy


A happy heart is good medicine.

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