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Stef

Very Frustrated, Could Use Some Direction

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Stef,

 

Glad your appointment went well. Hang in there, they will find answers for you.

 

With gentle thoughts,

 

Judy


A happy heart is good medicine.

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Hi Stef ,

 

I am glad that you liked Dr. Medsger. I did, too. Gareth had the same problems with positive blood results from ELISHA but negative in his lab at UPMC. Dr. Medsger did come up with the + ANA, speckled pattern, diffuse cytoplasm, though. Gareth's had the + AntiRNA-Polymerase 1/111 done 3 times at ELISHA and all 3 times it's been positive. Dr. Medsger's lab said it was negative. All we know is that the Plaquenil is still working!!!

 

Take care, Everyone.

Margaret

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Margaret,

 

I know! It's horribly frustrating sometimes! Even with reputatable labs, there are still potentials for incorrect results. Auto-antibodies aren't the only lab results I've personally had "trouble" with. I went through 6 different labs and sets of tests as I had inconsistencies when my doctors tested for AMA (anti-mitrochondrial antibodies...liver related), until it was concluded 4 out of 6 tests were positive, and all positive tests showed the same level of AMA...ridiculous to have it done so many times!

 

Hugs,

Stef

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Stef,

 

Sometimes the frustration is worse than the disease! :wacko: I also have had more than one positive Scl-70 but no skin thickening (thank goodness). Unfortunately that seems to cause more confusion among the doctors than conclusions. Then thanks to my HMO (Health Maintenance Organization) (grrrrrrrr) my specialist can't seem to get my internist to order the right type of ANA. I think it's the old fashioned one with complete reporting that she wanted. Guess I'll be donating some more blood samples again so they can try to get it right. Hang in there. Best advice I ever got was to keep a symptom diary. I got a calendar with enough space to write down my symptoms each day (most days there's enough room, hee hee). It helped me to see patterns and associate some symptoms with triggers in my daily life. Hope you find the answers you're searching for!

 

With good thoughts,

 

Heather

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This is really a "shot in the arm", figuratively speaking, of course!

 

I'm so glad that you were pleased with how things went, Stef. It's

so nice to feel as though you're going to get some answers to long

awaited questions, I'm sure.

 

(I totally agree with everything Amanda said in her post)!

 

Thanks for sharing the good news with us...we're as happy about it

as you are!


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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