Jump to content
Sclero Forums
sadie20

Treatment Options

Recommended Posts

Sadie,

I looked in the ISN section on Treatments for skin fibrosis and didn't see anything about cytoxan but did find a 2003 study on Fibrosis regression induced by IVIg treatment.

 

Cytoxan has been found to be successful for scleroderma pulmonary fibrosis, but I haven't found anything on skin fibrosis. It will be interesting to hear if someone has had success with either of these treatments. I do get IVIg treatments every 6 weeks and have for the past 1.5 years, but I never really had skin involvement except on my hands during year one. My IVIg is treatment for my polymyositis.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

I've been on IV cytoxan 4 of 6 treatments, 1 a month. Cytoxan is also available in pill form. It takes 4-5 hours in an infusion room and I'm very tired after. I breathe much clearer and my skin is softer and supple especially on my hands and neck. I've met people who have done several rounds of this type of cytoxan and I hear it must be monitored for toxicity. I meet with my rheumatologist 10 days after each treatment for a check up and blood work. I also work FT, so it is rather time consuming.

 

I believe my rheumatologist chose cytoxan because of the severity of my lungs as it has also has been shown to be effective in slowing or stopping lung progression. It is how one doctor wrote, " sledge hammer to your immune system."

 

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×