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Lichen sclerosus & Planus?

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I was diagnosed with limited scleroderma but up till about 6 - 8 months ago my mouth started swelling, tightening and now I have a white scar looking pattern inside on my cheeks. I also have a embarrassing itching problems in my private areas. In the back area I noticed a white looking patch that was similar as in my mouth. I've searched and read about lichen sclerosus and planus and they both sound like me. But it doesn't sound like it's common to get them both together. I'm confused and frustrated from the itching, and too embarrassed to go to the doctor. I know...I will have to break down one of these days but I have so many stupid irritating problems with this disease I feel like a basket case.


Does anyone else have these problems and what do you do for it?

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Welcome to the ISN forums! Sorry to read about everything you are going through right now. Itching is the worst, especially in the private areas! Personally, I think you should see a doctor as soon as you can. Home remedies could possibly make the itching even worse and you certainly don't want that. If your embarrassment is because you're female and the doctor is male (just an assumption), then maybe you could find a female doctor so you'll feel more comfortable. You really should see a doctor regardless.


I haven't experienced what you are going through with the sores so all I can provide is a link to our page on Lichen Sclerosus and my support. Please see a doctor (your primary care physician, a dermatologist or even an OB GYN) as soon as you can. The itching is only adding to you anxiety, I'm sure. Please let us know what you decide and how you are doing.


Big Hugs,

Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hello Kadee,


I am so sorry to hear that you are going through this. It is awful to be sort of "alone" with your suffering. Please go to the doctor asap to see if what you have really is the lichen. Any good gynecologist would be able to diagnose the lichen and would not be shocked by it at all! If anything, they should be very supportive and help you with the correct treatment.


I guess I am wondering how common lichen is among Scleroderma patients...does anyone know about this?


Good luck with your treatment, i hope that you are feeling better soon.






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Hello Kadee


Welcome and go to the doctor! :lol:


You have not done anything wrong and have nothing to feel bad about. Do not continue to suffer unnecessarily when relief could just be a prescription away and when you get that relief you'll wonder why you waited so long.


Remember embarrassing to you is bread and butter to the doctor who's seen it all before, the symptom if not the cause.


Take care.



Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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